{"id":33570,"date":"2023-06-05T15:06:48","date_gmt":"2023-06-05T13:06:48","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?p=33570"},"modified":"2024-02-20T17:22:09","modified_gmt":"2024-02-20T16:22:09","slug":"time-for-more-health","status":"publish","type":"post","link":"https:\/\/eufortrisomy21.eu\/cs\/time-for-more-health\/","title":{"rendered":"\u010cas pro v\u00edce zdrav\u00ed"},"content":{"rendered":"

Budoucnost je na\u0161e: Obrovsk\u00fd \u00fasp\u011bch v Bruselu <\/strong><\/p>\n

Brusel, 1. kv\u011btna<\/strong>2<\/strong>, 2023<\/strong><\/p>\n

Ofici\u00e1ln\u00ed zpr\u00e1vu najdete tady<\/a>.<\/p>\n

\"\"Projekt Future is Ours dos\u00e1hl velk\u00e9ho \u00fasp\u011bchu d\u00edky sv\u00e9 ned\u00e1vn\u00e9 osobn\u00ed akci #TheFutureIsOurs, kter\u00e1 se konala v Bruselu od 1. kv\u011btna do 3. kv\u011btna. Tato ud\u00e1lost znamenala v\u00fdznamn\u00fd miln\u00edk pro sebeobranu Downova syndromu a p\u0159il\u00e1kala 72 jednotlivc\u016f z 11 zem\u00ed EU, v\u010detn\u011b 28 sebeobh\u00e1jc\u016f s Downov\u00fdm syndromem.<\/p>\n

Akce byla zah\u00e1jena p\u0159\u00edjemnou ve\u010de\u0159\u00ed 1. kv\u011btna, kde se se\u0161li \u00fa\u010dastn\u00edci z r\u016fzn\u00fdch zem\u00ed a pod\u011blili se o sv\u00e9 zku\u0161enosti. Dne 2. kv\u011btna p\u0159iv\u00edtal europoslanec Luk\u00e1\u0161 Mandl \u00fa\u010dastn\u00edky v budov\u011b ZWEIG a vyj\u00e1d\u0159il svou podporu c\u00edl\u016fm akce a zd\u016fraznil d\u016fle\u017eitost obhajoby pr\u00e1v jednotlivc\u016f s Downov\u00fdm syndromem.<\/p>\n

Workshopy, kter\u00e9 se t\u00fdkaly \u0159ady t\u00e9mat souvisej\u00edc\u00edch s viditelnost\u00ed autonomie, rovn\u00e9ho zach\u00e1zen\u00ed a pohody lid\u00ed s Downov\u00fdm syndromem, byly informativn\u00ed a praktick\u00e9 a poskytovaly \u00fa\u010dastn\u00edk\u016fm cenn\u00e9 znalosti a n\u00e1stroje ke zlep\u0161en\u00ed jejich zdrav\u00ed a pohody. Odpoledne se panelov\u00e1 diskuse Time for more Health, v n\u00ed\u017e vystoupili europoslankyn\u011b Rosa Estar\u00e0s Ferragut, europoslanec Helmut Geuking, profesorka Mara Dierssen Sotos, doktorka Pilar Garcia Fern\u00e1ndez, sebeobh\u00e1jkyn\u011b Jean Phillipe Barone a expertka Mareike Fuisz, zab\u00fdvala d\u016fle\u017eit\u00fdmi ot\u00e1zkami souvisej\u00edc\u00edmi se zdrav\u00edm. a pohodu lid\u00ed s Downov\u00fdm syndromem.<\/p>\n

\"\"<\/p>\n

Jednou z nejp\u016fsobiv\u011bj\u0161\u00edch sou\u010d\u00e1st\u00ed akce byla \u010d\u00e1st \u201eSeznamte se se sv\u00fdm poslancem\u201c, kter\u00e1 \u00fa\u010dastn\u00edk\u016fm poskytla p\u0159\u00edle\u017eitost setkat se se z\u00e1stupci sv\u00e9 zem\u011b v Evropsk\u00e9m parlamentu a h\u00e1jit jejich pr\u00e1va jako sebeobh\u00e1jc\u016f s Downov\u00fdm syndromem. P\u0159edsedkyn\u011b Roberta Metsola byla mezi mnoha poslanci Evropsk\u00e9ho parlamentu, kte\u0159\u00ed oslavili tuto p\u0159\u00edle\u017eitost, a v\u0161echny srde\u010dn\u011b p\u0159iv\u00edtala.<\/p>\n

Akce vyvrcholila p\u0159\u00edjemnou recepc\u00ed po\u0159\u00e1danou poslankyn\u00ed Evropsk\u00e9ho parlamentu Margaritou De la Pisou, kter\u00e1 \u00fa\u010dastn\u00edk\u016fm, \u0159e\u010dn\u00edk\u016fm a organiz\u00e1tor\u016fm poskytla p\u0159\u00edle\u017eitost odpo\u010dinout si, zatancovat si a pochutnat si na \u0161pan\u011blsk\u00fdch lah\u016fdk\u00e1ch.<\/p>\n

EU For Trisomy 21 je hrd\u00e1 na \u00fasp\u011bch t\u00e9to akce, kter\u00e1 spojuje r\u016fznorodou skupinu sebeobh\u00e1jc\u016f s Downov\u00fdm syndromem z r\u016fzn\u00fdch zem\u00ed a prost\u0159ed\u00ed. Jsme vd\u011b\u010dn\u00ed na\u0161im \u0159e\u010dn\u00edk\u016fm, \u00fa\u010dastn\u00edk\u016fm a partnersk\u00fdm organizac\u00edm za jejich obrovskou podporu p\u0159i prosazov\u00e1n\u00ed pr\u00e1v jednotlivc\u016f s Downov\u00fdm syndromem. D\u011bkujeme tak\u00e9 poslanc\u016fm Evropsk\u00e9ho parlamentu za jejich laskavou p\u0159\u00edtomnost na akci. Z\u016fsta\u0148te nalad\u011bni na dal\u0161\u00ed fotografie, videa a budouc\u00ed zpr\u00e1vy o obhajov\u00e1n\u00ed Downova syndromu a sebeobhajov\u00e1n\u00ed na na\u0161em webu a kan\u00e1lech soci\u00e1ln\u00edch m\u00e9di\u00ed.<\/p>","protected":false},"excerpt":{"rendered":"

The Future Is Ours: A Resounding Success in Brussels Brussels, May 12, 2023 You can find the official report here.…<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[45],"tags":[],"class_list":["post-33570","post","type-post","status-publish","format-standard","hentry","category-21-march-21"],"acf":[],"_links":{"self":[{"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/posts\/33570"}],"collection":[{"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/comments?post=33570"}],"version-history":[{"count":3,"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/posts\/33570\/revisions"}],"predecessor-version":[{"id":33630,"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/posts\/33570\/revisions\/33630"}],"wp:attachment":[{"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/media?parent=33570"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/categories?post=33570"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/cs\/wp-json\/wp\/v2\/tags?post=33570"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}