{"id":33908,"date":"2025-01-27T16:36:48","date_gmt":"2025-01-27T15:36:48","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?p=33908"},"modified":"2025-03-19T08:40:04","modified_gmt":"2025-03-19T07:40:04","slug":"world-down-syndrome-day-2025","status":"publish","type":"post","link":"https:\/\/eufortrisomy21.eu\/de\/world-down-syndrome-day-2025\/","title":{"rendered":"Welt-Down-Syndrom-Tag 2025: Von Projekten zu Politik \u2013 Inklusion von Menschen mit Down-Syndrom in Europa"},"content":{"rendered":"<p class=\"translation-block\"><img loading=\"lazy\" class=\"wp-image-33952 size-large alignright\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1-724x1024.png\" alt=\"\" width=\"724\" height=\"1024\"><b>Brussels, Belgium<\/b><span style=\"font-weight: 400\"> \u2014 Am 19. M\u00e4rz 2025 veranstaltet EU for Trisomy 21 auf Einladung verschiedener Mitglieder des Europ\u00e4ischen Parlaments (MdEPs) eine bedeutende Veranstaltung im Europ\u00e4ischen Parlament anl\u00e4sslich des Welt-Down-Syndrom-Tags.\n\nDas diesj\u00e4hrige Motto \u201eVon Projekten zu Politik: Inklusion von Menschen mit Down-Syndrom in Europa\u201c hat das Ziel, eine inklusivere Gesellschaft zu f\u00f6rdern, in der die Stimmen von Menschen mit Down-Syndrom in die europ\u00e4ischen politischen Debatten einflie\u00dfen.<\/p>\n<p data-pm-slice=\"1 1 []\">As part of broader efforts to raise awareness and engage local communities, this event will serve as a key milestone in the <strong>European Self Advocacy Project<\/strong>, ein <strong>Erasmus+<\/strong> sponsored initiative dedicated to empowering individuals with Down syndrome and intellectual disabilities.<\/p>\n<h3>Coffee &amp; Socks<\/h3>\n<p><span style=\"font-weight: 400;\">The day will kick off at <strong>09<\/strong><\/span><b>:30 AM<\/b><span style=\"font-weight: 400;\"> with a special coffee service, where <\/span><b>waiters with Down Syndrome<\/b><span style=\"font-weight: 400;\"> will showcase their professional skills as servers for the day in the official coffee places of the European Parliament. They will be working in the <strong>Forum Bar<\/strong> (<\/span>VoxBox bar)<span style=\"font-weight: 400;\"> und <strong>Hemicycle bar<\/strong> (<\/span>Mickey Mouse Cafe)<span style=\"font-weight: 400;\"> in the European Parliament. <\/span>This collaboration provides a platform for people with Down syndrome to demonstrate their professional abilities to <strong>European legislators<\/strong>, highlighting the importance of <strong>employment opportunities<\/strong> and the contributions individuals with Down syndrome bring to the workforce.<\/p>\n<p><span style=\"font-weight: 400;\">MEPs will also have the chance to visit an <strong>information stand<\/strong> to take a picture showing their support to <strong>Welt-Down-Syndrom-Tag<\/strong>, wearing mismatched socks, raising awareness on how people with Down Syndrome may be different but still they enrich our society.<\/span><\/p>\n<p data-pm-slice=\"1 1 []\">Um 11:45 Uhr wird die Veranstaltung offiziell mit einer kurzen Zeremonie er\u00f6ffnet. Roberta Metsola, die Pr\u00e4sidentin des Europ\u00e4ischen Parlaments, wird ebenfalls anwesend sein, um die Teilnehmenden zu begr\u00fc\u00dfen und f\u00fcr Fotos zur Verf\u00fcgung zu stehen. Unsere Gastgeberin, MdEP Miriam Lexmann, hat weitere Mitglieder des Europ\u00e4ischen Parlaments eingeladen, um sich aktiv zu beteiligen, mit Selbstvertretern und Partnerorganisationen ins Gespr\u00e4ch zu kommen und ihre Unterst\u00fctzung f\u00fcr die Initiative zu zeigen. <strong>11:45 A<\/strong><strong>M<\/strong>, the event will officially open with a brief ceremony with our host <strong>MEP Miriam Lexmann<\/strong> who invited various other <strong>Mitglieder des Europ\u00e4ischen Parlaments<\/strong>\u00a0to participate, engage with <strong>self-advocates<\/strong> und <strong>partner organizations<\/strong>, and show their support for the cause.<\/p>\n<p data-pm-slice=\"1 1 []\">The afternoon will be dedicated to a <strong>conference<\/strong> starting at <strong>2:00 PM<\/strong> In <strong>Room ASP 1H1<\/strong>, focusing on key issues such as <strong>equality, health, employment,<\/strong> und <strong>self-advocacy<\/strong> for people with Down syndrome. The conference will bring together <strong>policymakers, researchers, healthcare professionals,<\/strong> und <strong>self-advocates<\/strong> to discuss <strong>successful projects, research,<\/strong> und <strong>future EU policies<\/strong> that promote <strong>full inclusion, autonomy,<\/strong> und <strong>opportunities<\/strong> for people with Down syndrome.<\/p>\n<h3 data-pm-slice=\"1 1 []\">Conference: From Projects to Policies<\/h3>\n<p class=\"translation-block\">Die Konferenz wird gemeinsam von den MdEPs Romana Jerkovi\u0107 und Paolo Inselvini moderiert.<\/p>\n<ul>\n<li><span class=\"s10\">Opening words: <\/span><span class=\"s10\">Paolo <\/span><span class=\"s10\">Inselvini<\/span><span class=\"s10\">, Member of the European Parliament<\/span><\/li>\n<\/ul>\n<p>The first part of the conference will be co- hosted by <strong>Antonio Rosique<\/strong> and EDSA Self-Advocate <strong>Ivan Kos<\/strong> from Croatia.<\/p>\n<ul>\n<li>&#8220;Including the voices of people with down syndrome in the<span class=\"s10\"> European Society<\/span>\n<ul>\n<li>European S<span class=\"s10\">elf-Advocates<\/span><span class=\"s10\">: <\/span><span class=\"s10\">Fiona<\/span> <span class=\"s10\">Lambart<\/span><span class=\"s10\"> Self-advocate and Katrina Lambart from BVDS &amp; EU for Trisomy 21<\/span><\/li>\n<li>\u201c<span class=\"s10\">Valueable<\/span><span class=\"s10\">\u201d<\/span><span class=\"s10\"> Project: Dinka Vukovic <\/span><span class=\"s10\">\u2013<\/span><span class=\"s10\"> president of E<\/span><span class=\"s10\">uropean Down Syndrome Association<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li><span class=\"s10\">Inclusion in the EU: Katrin <\/span><span class=\"s10\">Langensiepen<\/span> <span class=\"s10\">\u2013<\/span><span class=\"s10\"> MdEP <\/span><span class=\"s10\">Co-<\/span><span class=\"s10\">Chair of the Intergroup on Disabilities<\/span><span class=\"s10\">(TBC)<\/span><\/li>\n<li>Q&amp;A and short break<\/li>\n<\/ul>\n<p>The second part of the conference will be hosted by <span class=\"s10\"><strong>Marie-Claude Potier<\/strong>, President of Trisomy 21 Research<\/span><span class=\"s10\"> Society<\/span><\/p>\n<ul>\n<li class=\"s12\"><span class=\"s10\">Research improving lives of people with Down Syndrome in Europe<\/span>\n<ul>\n<li class=\"s12\">Respire 21 Project: <span class=\"s10\">Pr<\/span><span class=\"s10\"> MD Brigitte <\/span><span class=\"s10\">Fauroux<\/span><span class=\"s10\">, Necker Hospital for children<\/span><\/li>\n<li class=\"s12\">ICOD<span class=\"s10\"> project<\/span><span class=\"s10\">:<\/span> <span class=\"s10\">Pier Vincenzo Piazza, CEO <\/span><span class=\"s10\">Aelis<\/span> <span class=\"s10\">Farma<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li>From projects to policy<span class=\"s10\"> in the European Union<\/span>\n<ul>\n<li>Guillaume <span class=\"s10\">Duriez<\/span><span class=\"s10\">, Director of the Medical <\/span><span class=\"s10\">Insitut<\/span><span class=\"s10\"> J<\/span><span class=\"s10\">\u00e9<\/span><span class=\"s10\">r<\/span><span class=\"s10\">\u00f4<\/span><span class=\"s10\">me Lejeune<\/span><\/li>\n<li>Romana <span class=\"s10\">Jerkovic<\/span><span class=\"s10\">, MEP Vice-Chair of Public Health subcommittee<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<div class=\"s15\"><span class=\"s10\">Conclusion:<\/span><span class=\"s10\"> Jos<\/span><span class=\"s10\">\u00e9<\/span><span class=\"s10\"> Guti<\/span><span class=\"s10\">\u00e9<\/span><span class=\"s10\">rrez, <\/span><span class=\"s10\">Vice-president<\/span><span class=\"s10\"> of <\/span><span class=\"s10\">Europ\u00e4ische<\/span><span class=\"s10\"> Down-Syndrom-Vereinigung<\/span><\/div>\n<\/li>\n<li>\n<div class=\"s15\"><span class=\"s10\">Q<\/span><span class=\"s10\">&amp;A<\/span><\/div>\n<\/li>\n<\/ul>\n<p data-pm-slice=\"1 1 []\" class=\"translation-block\">Die Veranstaltung endet mit einer dynamischen Fragerunde, die den Teilnehmenden die M\u00f6glichkeit bietet, direkt mit den Referenten ins Gespr\u00e4ch zu kommen. Gemeinsam werden die entscheidenden n\u00e4chsten Schritte er\u00f6rtert, um den \u00dcbergang von erfolgreichen Einzelprojekten hin zu koh\u00e4renten, systematischen und nachhaltigen politischen Ma\u00dfnahmen zu gestalten, die gew\u00e4hrleisten, dass Menschen mit Down-Syndrom als gleichberechtigte B\u00fcrger in Europa vollst\u00e4ndig einbezogen werden.<\/p>\n<p><b>What:<\/b><b><br \/>\n<\/b><span style=\"font-weight: 400;\"><strong>World Down Syndrome Day Celebration<\/strong> &#8211; &#8220;From Projects to Policies: Including People with Down Syndrome in Europe&#8221;<\/span><\/p>\n<p><b>When:<\/b><b><br \/>\n<\/b><span style=\"font-weight: 400;\">March 19, 2025<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Coffee Service: 09:30 AM<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Ceremony: 12:30 PM<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Conference: 14:00 PM<\/span><\/p>\n<p><b>Where:<\/b><b><br \/>\n<\/b><span style=\"font-weight: 400;\">European Parliament, Brussels, Belgium<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><strong>F<\/strong><strong style=\"font-weight: 400;\">orum Bar<\/strong>\u00a0und <strong style=\"font-weight: 400;\">Hemicycle bar<\/strong>\u00a0<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Room ASP 1H1<\/span><\/p>\n<p data-pm-slice=\"1 1 []\" class=\"translation-block\">Bewerben Sie sich <a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSeHuyCLSObIexLr9NJI8ez9YHGV8w-oEmlkEh5euDfrJ8ywLw\/viewform?usp=dialog\" target=\"_self\">hier<\/a>, um an der Sitzung teilzunehmen. Bitte f\u00fcllen Sie das Formular aus, damit wir Ihren Zugang zum Europ\u00e4ischen Parlament organisieren k\u00f6nnen.<\/p>\n<p class=\"translation-block\">Diese Veranstaltung unterstreicht die Notwendigkeit, dass die Europ\u00e4ische Union den Schritt von der Unterst\u00fctzung einzelner Projekte hin zur Umsetzung umfassender, langfristiger politischer Ma\u00dfnahmen macht, die das Leben von Menschen mit Down-Syndrom nachhaltig verbessern.\n\nDer Fokus liegt auf der Sicherstellung von Chancengleichheit, vollst\u00e4ndiger Inklusion im Gesundheitswesen, politischer Teilhabe und Besch\u00e4ftigung sowie der Schaffung barrierefreier Umgebungen f\u00fcr Menschen mit Down-Syndrom.\n\nZudem wird die Veranstaltung die wertvollen Beitr\u00e4ge von Menschen mit Down-Syndrom hervorheben und die zentrale Rolle der EU bei der F\u00f6rderung eines inklusiveren Europas durch systematische und wirkungsvolle politische Ma\u00dfnahmen betonen.<\/p>\n<p class=\"translation-block\">Als Teil einer 30-t\u00e4gigen Online-Awareness-Kampagne im Vorfeld des Welt-Down-Syndrom-Tags verst\u00e4rkt diese Veranstaltung die Sichtbarkeit und Wirkung des European Self-Advocacy Project in ganz Europa.\n\nDurch Medienarbeit, Online-Advocacy und lokale Initiativen macht die Kampagne deutlich, dass es notwendig ist, \u00fcber einzelne Ma\u00dfnahmen hinauszugehen und langfristige Politiken zu entwickeln, die eine vollst\u00e4ndige Inklusion sowie Chancengleichheit f\u00fcr Menschen mit Down-Syndrom in den Bereichen Besch\u00e4ftigung, Gesundheitsversorgung und politische Teilhabe f\u00f6rdern.<\/p>\n<p><b>\u00dcber den Welt Down Syndrome Tag<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Der Welt-Down-Syndrom-Tag, der j\u00e4hrlich am 21. M\u00e4rz begangen wird, ist ein weltweites Ereignis zur Sensibilisierung f\u00fcr das Down-Syndrom und zur F\u00f6rderung der Inklusion von Menschen mit Down-Syndrom in allen Bereichen der Gesellschaft.\n\nDie Feierlichkeiten setzen sich f\u00fcr gleiche Rechte, Zugang zu Gesundheitsversorgung und Chancengleichheit f\u00fcr Menschen mit Down-Syndrom ein und f\u00f6rdern ein besseres Verst\u00e4ndnis sowie eine st\u00e4rkere gesellschaftliche Teilhabe.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">For media inquiries or additional information, please contact: contact@eufortrisomy21.eu<\/span><\/p>\n<p class=\"translation-block\">Wenn Sie an der Veranstaltung teilnehmen m\u00f6chten, <a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSeHuyCLSObIexLr9NJI8ez9YHGV8w-oEmlkEh5euDfrJ8ywLw\/viewform?usp=dialog\" target=\"_self\">f\u00fcllen Sie bitte dieses Formular aus<\/a>, damit wir Ihren Zugang zum Europ\u00e4ischen Parlament organisieren k\u00f6nnen. Anmeldefrist: 11. M\u00e4rz.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33936\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs.png\" alt=\"\" width=\"86\" height=\"86\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs.png 423w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs-300x300.png 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs-150x150.png 150w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs-12x12.png 12w\" sizes=\"(max-width: 86px) 100vw, 86px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33933\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo.jpg\" alt=\"\" width=\"166\" height=\"77\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo.jpg 991w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo-300x139.jpg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo-768x356.jpg 768w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo-18x8.jpg 18w\" sizes=\"(max-width: 166px) 100vw, 166px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33935\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511.jpg\" alt=\"\" width=\"247\" height=\"60\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511.jpg 407w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511-300x73.jpg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511-18x4.jpg 18w\" sizes=\"(max-width: 247px) 100vw, 247px\" \/> \u00a0<img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33932\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text.jpeg\" alt=\"\" width=\"131\" height=\"77\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text.jpeg 320w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text-300x176.jpeg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text-18x12.jpeg 18w\" sizes=\"(max-width: 131px) 100vw, 131px\" \/><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33928\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-1024x215.jpg\" alt=\"\" width=\"309\" height=\"65\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-1024x215.jpg 1024w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-300x63.jpg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-768x161.jpg 768w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-1536x322.jpg 1536w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-2048x430.jpg 2048w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-18x4.jpg 18w\" sizes=\"(max-width: 309px) 100vw, 309px\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>Brussels, Belgium \u2014 On March 19, 2025, EU for Trisomy 21 invited by various Members of the European Parliament (MEPs),&hellip;<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[45],"tags":[],"class_list":["post-33908","post","type-post","status-publish","format-standard","hentry","category-21-march-21"],"acf":[],"_links":{"self":[{"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/posts\/33908"}],"collection":[{"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/comments?post=33908"}],"version-history":[{"count":26,"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/posts\/33908\/revisions"}],"predecessor-version":[{"id":33967,"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/posts\/33908\/revisions\/33967"}],"wp:attachment":[{"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/media?parent=33908"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/categories?post=33908"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/de\/wp-json\/wp\/v2\/tags?post=33908"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}