{"id":31286,"date":"2021-03-03T19:33:11","date_gmt":"2021-03-03T18:33:11","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?page_id=31286"},"modified":"2026-04-02T02:06:04","modified_gmt":"2026-04-02T00:06:04","slug":"privacy-policy","status":"publish","type":"page","link":"https:\/\/eufortrisomy21.eu\/es\/privacy-policy\/","title":{"rendered":"Privacy Policy \u2013 Confidentiality and Personal Data Management"},"content":{"rendered":"

\n\t\t\t\t<\/h1>\n\t

The purpose of this confidentiality policy is to define the principles and guidelines implemented by EU for Trisomy 21 in the framework of the “UE para la trisom\u00eda 21<\/em>” label and to affirm its commitment to preserve as far as possible the confidentiality, integrity and security of the data we collect in the context of our activities and missions.<\/p>\n

El prop\u00f3sito de esta pol\u00edtica es informarle sobre la forma en que recopilamos y procesamos sus datos personales de acuerdo con la normativa.<\/p>\n

We invite you to regularly review this policy, which may be updated and supplemented. EU for Trisomy 21 , within the framework of the “EU for Trisomy 21” label, will bring any new version to your attention by any means of its choice, including online or by e-mail.<\/p>\n

This Privacy Policy applies to the EU for Trisomy 21 website and to users who access our services, including by logging in via Facebook (Meta).<\/p>\n

\u00bfQui\u00e9n recopila sus datos?<\/h3>\n

The present policy concerns exclusively the processing implemented by EU for Trisomy 21, within the framework of the “UE para la trisom\u00eda 21<\/em>” label. EU for Trisomy 21, represented by its legal representative, Antonio Rosique 13, Clos des Pervenches 1300 – Limal (Belgium), is responsible for the processing.<\/p>\n

 <\/p>\n

\u00bfQu\u00e9 datos recopilamos?<\/h3>\n

We collect personal data necessary for the operation of our website, user accounts, events, projects, and related activities. The information is communicated by sending online registration forms, directly accessible on our website. It may also be communicated indirectly by third parties who are linked or in contact with us. In this case, the persons concerned will be informed by e-mail of the data collected about them. They will have the possibility to have access to it and to oppose it.<\/p>\n

Por lo tanto, podemos ser llevados a recopilar diversos datos de acuerdo con los fines considerados, tales como:<\/p>\n

    \n
  • Identification data: surname, first name, postal and e-mail address, telephone number, date of birth, postal code, country …<\/li>\n
  • Personal life data: family situation, description (what you like, your hobbies…), photo…<\/li>\n
  • NGO data: website, social networks, purpose of your association…<\/li>\n<\/ul>\n

     <\/p>\n

    \u00bfSobre qu\u00e9 base y por qu\u00e9 utilizamos sus datos?<\/h3>\n

    All processing carried out by EU for Trisomy 21, within the framework of the “UE para la trisom\u00eda 21<\/em>” label, has a legal basis in accordance with article 6 of the RGPD, and is mainly based on our legitimate interest and your consent. However, they may also be based on one of the other legal bases provided for in Article 6.<\/p>\n

    Por lo tanto, los datos se recopilan principalmente para:<\/p>\n

      \n
    • Allow the operation of our website, user accounts, events, projects, communication activities, and related services,<\/li>\n
    • Comunicar e informar a los participantes de las actividades organizadas en estos eventos,<\/li>\n
    • Facilitar las relaciones con eurodiputados, ciudadanos y ONG,<\/li>\n
    • Cumplir con las obligaciones legales.<\/li>\n<\/ul>\n

       <\/p>\n

      \u00bfCu\u00e1nto tiempo conservamos sus datos?<\/h3>\n

      En el marco de la “EU for Trisomy 21<\/em>” label, the EU for Trisomy 21 association keeps your personal data for the time necessary for the operations for which they were collected and in compliance with the regulations in force, it being specified that :<\/p>\n

        \n
      • Personal data is kept only for as long as necessary for the purposes for which it was collected and to comply with applicable legal obligations.<\/li>\n
      • Cookies deposited on the Internet user’s terminal are kept for a period of thirteen (13) months from their first deposit in the user’s terminal equipment.<\/li>\n
      • Cuando hay una apelaci\u00f3n contra un tercero o una disputa, sus datos personales pueden conservarse hasta el vencimiento de todas las v\u00edas de apelaci\u00f3n.<\/li>\n<\/ul>\n

         <\/p>\n

        No data transfer is made. In the event of an unsatisfactory response, you may file a complaint with the Cnil (Commission nationale de l’informatique et des libert\u00e9s), the French body responsible for ensuring the protection of personal data.<\/p>\n

         <\/p>\n

        \u00bfQui\u00e9n tiene acceso a sus datos?<\/h3>\n

        The data is only communicated to the association EU for Trisomy 21 within the framework of the “EU for Trisomy 21” label, to our volunteers and to our service providers. We make every effort to ensure that only authorized persons within the framework of the strict fulfillment of the purpose pursued and our legal obligations can have access to the data we process.<\/p>\n

        Para garantizar la eficiencia y seguridad de nuestro procesamiento, podemos comunicarlos a destinatarios externos, proveedores de servicios y asesoramiento profesional, por ejemplo, para mantenimiento y seguridad de computadoras, alojamiento, administraci\u00f3n y mantenimiento de nuestros sitios web, correo electr\u00f3nico, organizaci\u00f3n y administraci\u00f3n de comunicaciones. campa\u00f1as, etc.<\/p>\n

         <\/p>\n

        \u00bfD\u00f3nde se almacenan sus datos?<\/h3>\n

        Sus datos personales se almacenan en nuestros servidores internos en Francia.<\/p>\n

        \u00bfCu\u00e1les son las consecuencias si no se comunica cierta informaci\u00f3n?<\/p>\n

        Especificamos en nuestros formularios la informaci\u00f3n obligatoria con respecto al prop\u00f3sito principal que se persigue mediante la colocaci\u00f3n de un asterisco.<\/p>\n

         <\/p>\n

        \u00bfQu\u00e9 medidas de seguridad implementamos?<\/h3>\n

        EU for Trisomy 21, within the framework of the “EU for Trisomy 21” label, is committed to treating the personal data it collects with the utmost care and attention and implements technical, physical and organizational measures to prevent, as far as possible, any disclosure, alteration or unavailability. We also implement a policy of minimization by reducing the scope of data collection to what is strictly necessary.<\/p>\n

         <\/p>\n

        Cuales son tus derechos<\/h3>\n

        De acuerdo con el Reglamento General de Protecci\u00f3n de Datos 2016\/679, usted tiene derecho a la informaci\u00f3n, acceso y copia, rectificaci\u00f3n y actualizaci\u00f3n, supresi\u00f3n, portabilidad de los datos que le conciernen siempre que se cumplan las condiciones para la aplicaci\u00f3n de estos derechos.<\/p>\n

        En las mismas condiciones, tambi\u00e9n tiene, dependiendo de la base legal del procesamiento, el derecho a limitar y oponerse al procesamiento de los datos que le conciernen. Tambi\u00e9n puede retirar su consentimiento para el procesamiento en cualquier momento si el procesamiento se lleva a cabo sobre esta base legal y siempre que el procesamiento no se base tambi\u00e9n en otra base legal.<\/p>\n

        De acuerdo con el art\u00edculo 40-1 de la Ley de protecci\u00f3n de datos francesa, tambi\u00e9n tiene la posibilidad de dar instrucciones sobre el almacenamiento, la eliminaci\u00f3n y la comunicaci\u00f3n de sus datos personales despu\u00e9s de su muerte.<\/p>\n

        Le informamos que tiene derecho a presentar una reclamaci\u00f3n ante la CNIL si considera, tras contactar con nosotros, que no se respetan sus derechos en materia de protecci\u00f3n de datos.<\/p>\n

         <\/p>\n

        \u00bfA qui\u00e9n contactar para obtener m\u00e1s informaci\u00f3n o para ejercer sus derechos?<\/h3>\n

        Puede, sujeto a la presentaci\u00f3n de una prueba de identidad v\u00e1lida, ejercer sus derechos poni\u00e9ndose en contacto con nosotros:<\/p>\n

        o By mail: Association EU for Trisomy 21 – 13, Clos des Pervenches 1300 – Limal (Belgium)<\/p>\n

        o Por correo electr\u00f3nico: contact@eufortrisomy21.eu<\/p>\n

         <\/p>\n

        Acerca de las cookies<\/h3>\n

        Para garantizarle una mejor experiencia, este sitio solo utiliza cookies para monitorear el tr\u00e1fico y la fluidez de la navegaci\u00f3n (Google Analytics). Estas cookies no se utilizan con fines publicitarios o comerciales. Si contin\u00faa navegando por este sitio, acepta este uso.<\/p>\n

         <\/p>\n

        What is a “cookie”?<\/h3>\n

        A “cookie” is a file of limited size, usually consisting of letters and numbers, sent by the web server to the cookie file of the browser located on the hard drive of your computer. These features use third-party cookies directly deposited by these services.<\/p>\n

        En cualquier momento puede informarse y configurar sus cookies para aceptarlas o rechazarlas en su navegador web. Podr\u00e1 indicar su preferencia globalmente para el sitio o por p\u00e1gina.<\/p>\n

        Estas cookies son generadas autom\u00e1ticamente por la plataforma operativa, la Asociaci\u00f3n UE para la Trisom\u00eda 21 no tiene ninguna acci\u00f3n en su generaci\u00f3n.<\/p>\n

        Sin embargo, dependiendo de las plataformas utilizadas, tiene la posibilidad de oponerse a ellas, eliminarlas utilizando los par\u00e1metros de su navegador o incluso bloquearlas.<\/p>\n

         <\/p>\n

        Derechos de privacidad e imagen<\/h3>\n

        En nuestros formularios de registro, es posible que se le solicite que proporcione una fotograf\u00eda (no obligatoria), que se publicar\u00e1 en este sitio web y \/ o en las redes sociales de “EU for Trisomy 21”.<\/em> Estos se distribuyen con el consentimiento de las personas interesadas, que tienen derecho a retirar su consentimiento en cualquier momento.<\/p>\n

        The procedures for exercising this right are identical to those relating to the processing of personal data, i.e. by writing to the personal data protection manager of the EU for Trisomy 21 association by post at the following postal address: Association EU for Trisomy 21 – 13, Clos des Pervenches 1300 – Limal (Belgium)\u00a0 or by e-mail at the following address: contact@eufortrisomy21.eu accompanied by a copy of a valid identity card.<\/p>\n

         <\/p>\n

        Use of Facebook (Meta) Login<\/h3>\nOur website allows users to create an account or log in using Facebook Login, a service provided by Meta Platforms, Inc.\nWhen you choose to log in with Facebook, we receive certain personal data from Meta, depending on your Facebook privacy settings and the permissions you grant. This typically includes your name, email address, and a unique Facebook user ID.\nWe use this data solely to:\n
          \n
        • \nauthenticate you on our website,\n<\/li>\n
        • \ncreate or manage your user account, and\n<\/li>\n
        • \ncommunicate with you in relation to our activities and services.\n<\/li>\n<\/ul>\nWe do not receive your Facebook password and we do not use Facebook Login data for advertising purposes.\nYou may revoke our access to your Facebook data at any time through your Facebook account settings. To request deletion of data we have received via Facebook Login, you may contact us using the details provided in the “Who to contact” section of this policy.\n

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