{"id":31286,"date":"2021-03-03T19:33:11","date_gmt":"2021-03-03T18:33:11","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?page_id=31286"},"modified":"2026-04-02T02:06:04","modified_gmt":"2026-04-02T00:06:04","slug":"privacy-policy","status":"publish","type":"page","link":"https:\/\/eufortrisomy21.eu\/fi\/privacy-policy\/","title":{"rendered":"Privacy Policy \u2013 Confidentiality and Personal Data Management"},"content":{"rendered":"<h1>\n\t\t\t\t<\/h1>\n\t<p>The purpose of this confidentiality policy is to define the principles and guidelines implemented by EU for Trisomy 21 in the framework of the &#8220;<em>EU Trisomy 21: lle<\/em>&#8221; label and to affirm its commitment to preserve as far as possible the confidentiality, integrity and security of the data we collect in the context of our activities and missions.<\/p>\n<p>T\u00e4m\u00e4n k\u00e4yt\u00e4nn\u00f6n tarkoituksena on kertoa sinulle tavasta, jolla ker\u00e4\u00e4mme ja k\u00e4sittelemme henkil\u00f6tietojasi m\u00e4\u00e4r\u00e4ysten mukaisesti.<\/p>\n<p>We invite you to regularly review this policy, which may be updated and supplemented. EU for Trisomy 21 , within the framework of the &#8220;EU for Trisomy 21&#8221; label, will bring any new version to your attention by any means of its choice, including online or by e-mail.<\/p>\n<p>This Privacy Policy applies to the EU for Trisomy 21 website and to users who access our services, including by logging in via Facebook (Meta).<\/p>\n<h3>Kuka ker\u00e4\u00e4 tietojasi?<\/h3>\n<p>The present policy concerns exclusively the processing implemented by EU for Trisomy 21, within the framework of the &#8220;<em>EU Trisomy 21: lle<\/em>&#8221; label. EU for Trisomy 21, represented by its legal representative, Antonio Rosique 13, Clos des Pervenches 1300 &#8211; Limal (Belgium), is responsible for the processing.<\/p>\n<p>&nbsp;<\/p>\n<h3>Mit\u00e4 tietoja ker\u00e4\u00e4mme?<\/h3>\n<p>We collect personal data necessary for the operation of our website, user accounts, events, projects, and related activities. The information is communicated by sending online registration forms, directly accessible on our website. It may also be communicated indirectly by third parties who are linked or in contact with us. In this case, the persons concerned will be informed by e-mail of the data collected about them. They will have the possibility to have access to it and to oppose it.<\/p>\n<p>Siksi meid\u00e4t voidaan ohjata ker\u00e4\u00e4m\u00e4\u00e4n erilaisia tietoja harkittujen tarkoitusten mukaisesti, kuten:<\/p>\n<ul>\n<li>Identification data: surname, first name, postal and e-mail address, telephone number, date of birth, postal code, country &#8230;<\/li>\n<li>Personal life data: family situation, description (what you like, your hobbies&#8230;), photo&#8230;<\/li>\n<li>NGO data: website, social networks, purpose of your association&#8230;<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h3>Mill\u00e4 perusteella ja miksi k\u00e4yt\u00e4mme tietojasi?<\/h3>\n<p>All processing carried out by EU for Trisomy 21, within the framework of the &#8220;<em>EU Trisomy 21: lle<\/em>&#8221; label, has a legal basis in accordance with article 6 of the RGPD, and is mainly based on our legitimate interest and your consent. However, they may also be based on one of the other legal bases provided for in Article 6.<\/p>\n<p>N\u00e4in ollen tietoja ker\u00e4t\u00e4\u00e4n p\u00e4\u00e4asiassa:<\/p>\n<ul>\n<li>Allow the operation of our website, user accounts, events, projects, communication activities, and related services,<\/li>\n<li>Kerro ja kerro osallistujille n\u00e4iss\u00e4 tapahtumissa j\u00e4rjestetyist\u00e4 toimista,<\/li>\n<li>Helpottaa suhteita parlamentin j\u00e4seniin, kansalaisiin ja kansalaisj\u00e4rjest\u00f6ihin,<\/li>\n<li>Noudata lakis\u00e4\u00e4teisi\u00e4 velvoitteita.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h3>Kuinka kauan s\u00e4ilyt\u00e4mme tietojasi?<\/h3>\n<p>Ohjelman puitteissa <em>&#8220;EU for Trisomy 21<\/em>&#8221; label, the EU for Trisomy 21 association keeps your personal data for the time necessary for the operations for which they were collected and in compliance with the regulations in force, it being specified that :<\/p>\n<ul>\n<li>Personal data is kept only for as long as necessary for the purposes for which it was collected and to comply with applicable legal obligations.<\/li>\n<li>Cookies deposited on the Internet user&#8217;s terminal are kept for a period of thirteen (13) months from their first deposit in the user&#8217;s terminal equipment.<\/li>\n<li>Kun valitusta tehd\u00e4\u00e4n kolmannesta osapuolesta tai riita, henkil\u00f6tietojasi voidaan s\u00e4ilytt\u00e4\u00e4 kaikkien muutoksenhakukeinojen p\u00e4\u00e4ttymiseen saakka.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>No data transfer is made. In the event of an unsatisfactory response, you may file a complaint with the Cnil (Commission nationale de l&#8217;informatique et des libert\u00e9s), the French body responsible for ensuring the protection of personal data.<\/p>\n<p>&nbsp;<\/p>\n<h3>Kenell\u00e4 on p\u00e4\u00e4sy tietoihisi?<\/h3>\n<p>The data is only communicated to the association EU for Trisomy 21 within the framework of the &#8220;EU for Trisomy 21&#8221; label, to our volunteers and to our service providers. We make every effort to ensure that only authorized persons within the framework of the strict fulfillment of the purpose pursued and our legal obligations can have access to the data we process.<\/p>\n<p>K\u00e4sittelymme tehokkuuden ja turvallisuuden varmistamiseksi voimme v\u00e4litt\u00e4\u00e4 ne ulkoisille vastaanottajille, palveluntarjoajille ja asiantuntijaneuvoja esimerkiksi tietokoneiden yll\u00e4pidon ja tietoturvan, verkkosivustojemme yll\u00e4pidon, yll\u00e4pidon, s\u00e4hk\u00f6postin, viestinn\u00e4n organisoinnin ja hallinnan osalta. kampanjat jne.<\/p>\n<p>&nbsp;<\/p>\n<h3>Mihin tietosi on tallennettu?<\/h3>\n<p>Henkil\u00f6tietosi tallennetaan sis\u00e4isille palvelimillemme Ranskassa.<\/p>\n<p>Mit\u00e4 seurauksia on, jos tiettyj\u00e4 tietoja ei v\u00e4litet\u00e4?<\/p>\n<p>M\u00e4\u00e4rit\u00e4mme lomakkeissamme pakolliset tiedot t\u00e4hd\u00e4n kiinnitt\u00e4misen p\u00e4\u00e4tavoitteesta.<\/p>\n<p>&nbsp;<\/p>\n<h3>Mit\u00e4 turvatoimia toteutamme?<\/h3>\n<p>EU for Trisomy 21, within the framework of the &#8220;EU for Trisomy 21&#8221; label, is committed to treating the personal data it collects with the utmost care and attention and implements technical, physical and organizational measures to prevent, as far as possible, any disclosure, alteration or unavailability. We also implement a policy of minimization by reducing the scope of data collection to what is strictly necessary.<\/p>\n<p>&nbsp;<\/p>\n<h3>Mitk\u00e4 ovat oikeutesi?<\/h3>\n<p>Tietosuojas\u00e4\u00e4nt\u00f6jen 2016\/679 mukaisesti sinulla on oikeus saada tietoja, k\u00e4ytt\u00e4\u00e4 ja kopioida, oikaista ja p\u00e4ivitt\u00e4\u00e4, poistaa ja siirt\u00e4\u00e4 sinua koskevia tietoja edellytt\u00e4en, ett\u00e4 n\u00e4iden oikeuksien soveltamisen ehdot t\u00e4yttyv\u00e4t.<\/p>\n<p>Samoilla ehdoilla sinulla on my\u00f6s oikeus rajoittaa ja vastustaa sinua koskevien tietojen k\u00e4sittely\u00e4 k\u00e4sittelyn oikeusperustasta riippuen. Voit my\u00f6s peruuttaa suostumuksesi k\u00e4sittelyyn milloin tahansa, jos k\u00e4sittely tapahtuu t\u00e4ll\u00e4 oikeusperustalla ja edellytt\u00e4en, ett\u00e4 k\u00e4sittely ei perustu my\u00f6sk\u00e4\u00e4n muuhun oikeusperustaan.<\/p>\n<p>Ranskan tietosuojalain 40-1 \u00a7: n mukaisesti sinulla on my\u00f6s mahdollisuus antaa ohjeita henkil\u00f6tietojesi s\u00e4ilytt\u00e4misest\u00e4, poistamisesta ja kommunikoinnista kuolemasi j\u00e4lkeen.<\/p>\n<p>Ilmoitamme sinulle, ett\u00e4 sinulla on oikeus tehd\u00e4 valitus CNIL: lle, jos katsot yhteydenoton j\u00e4lkeen, ett\u00e4 tietosuojaasi koskevia oikeuksiasi ei kunnioiteta.<\/p>\n<p>&nbsp;<\/p>\n<h3>Kenen puoleen haluat lis\u00e4tietoja tai k\u00e4ytt\u00e4\u00e4 oikeuksiasi?<\/h3>\n<p>Voit k\u00e4ytt\u00e4\u00e4 oikeuksiasi ottamalla meihin yhteytt\u00e4 edellytt\u00e4en, ett\u00e4 henkil\u00f6llisyystodistus on voimassa.<\/p>\n<p>o By mail: Association EU for Trisomy 21 &#8211; 13, Clos des Pervenches 1300 &#8211; Limal (Belgium)<\/p>\n<p>o s\u00e4hk\u00f6postitse: contact@eufortrisomy21.eu<\/p>\n<p>&nbsp;<\/p>\n<h3>Tietoja ev\u00e4steist\u00e4<\/h3>\n<p>Paremman kokemuksen takaamiseksi t\u00e4m\u00e4 sivusto k\u00e4ytt\u00e4\u00e4 ev\u00e4steit\u00e4 vain liikenteen ja navigoinnin sujuvuuden seuraamiseen (Google Analytics). N\u00e4it\u00e4 ev\u00e4steit\u00e4 ei k\u00e4ytet\u00e4 mainontaan tai kaupallisiin tarkoituksiin. Jatkamalla t\u00e4m\u00e4n sivuston selaamista hyv\u00e4ksyt t\u00e4m\u00e4n k\u00e4yt\u00f6n.<\/p>\n<p>&nbsp;<\/p>\n<h3>What is a &#8220;cookie&#8221;?<\/h3>\n<p>A &#8220;cookie&#8221; is a file of limited size, usually consisting of letters and numbers, sent by the web server to the cookie file of the browser located on the hard drive of your computer. These features use third-party cookies directly deposited by these services.<\/p>\n<p>Voit milloin tahansa ilmoittaa itsellesi ja asettaa ev\u00e4steesi hyv\u00e4ksym\u00e4\u00e4n tai hylk\u00e4\u00e4m\u00e4\u00e4n ne selaimessasi. Voit ilmoittaa mieltymyksesi joko maailmanlaajuisesti sivustolle tai sivun mukaan.<\/p>\n<p>K\u00e4ytt\u00f6ymp\u00e4rist\u00f6 luo n\u00e4m\u00e4 ev\u00e4steet automaattisesti, eik\u00e4 Association EU for Trisomy 21 ole toiminut niiden luomisessa.<\/p>\n<p>K\u00e4ytetyist\u00e4 alustoista riippuen sinulla on kuitenkin mahdollisuus vastustaa niit\u00e4, poistaa ne selaimesi parametreilla tai jopa est\u00e4\u00e4 ne.<\/p>\n<p>&nbsp;<\/p>\n<h3>Yksityisyys ja kuvan oikeudet<\/h3>\n<p>Rekister\u00f6intilomakkeissamme sinua saatetaan pyyt\u00e4\u00e4 toimittamaan valokuva (ei pakollinen), joka l\u00e4hetet\u00e4\u00e4n t\u00e4lle verkkosivustolle ja \/ tai <em>&#8220;EU for Trisomy 21&#8221;.<\/em> Ne jaetaan asianomaisten suostumuksella, joilla on oikeus peruuttaa suostumuksensa milloin tahansa.<\/p>\n<p>The procedures for exercising this right are identical to those relating to the processing of personal data, i.e. by writing to the personal data protection manager of the EU for Trisomy 21 association by post at the following postal address: Association EU for Trisomy 21 &#8211; 13, Clos des Pervenches 1300 &#8211; Limal (Belgium)\u00a0 or by e-mail at the following address: contact@eufortrisomy21.eu accompanied by a copy of a valid identity card.<\/p>\n<p>&nbsp;<\/p>\n<h3 data-start=\"3345\" data-end=\"3381\">Use of Facebook (Meta) Login<\/h3>\nOur website allows users to create an account or log in using Facebook Login, a service provided by Meta Platforms, Inc.\nWhen you choose to log in with Facebook, we receive certain personal data from Meta, depending on your Facebook privacy settings and the permissions you grant. This typically includes your name, email address, and a unique Facebook user ID.\nWe use this data solely to:\n<ul data-start=\"3785\" data-end=\"3938\">\n<li data-start=\"3785\" data-end=\"3821\">\nauthenticate you on our website,\n<\/li>\n<li data-start=\"3824\" data-end=\"3867\">\ncreate or manage your user account, and\n<\/li>\n<li data-start=\"3870\" data-end=\"3936\">\ncommunicate with you in relation to our activities and services.\n<\/li>\n<\/ul>\nWe do not receive your Facebook password and we do not use Facebook Login data for advertising purposes.\nYou may revoke our access to your Facebook data at any time through your Facebook account settings. To request deletion of data we have received via Facebook Login, you may contact us using the details provided in the &#8220;Who to contact&#8221; section of this policy.\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>The purpose of this confidentiality policy is to define the principles and guidelines implemented by EU for Trisomy 21 in&hellip;<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-31286","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/pages\/31286"}],"collection":[{"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/comments?post=31286"}],"version-history":[{"count":5,"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/pages\/31286\/revisions"}],"predecessor-version":[{"id":35036,"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/pages\/31286\/revisions\/35036"}],"wp:attachment":[{"href":"https:\/\/eufortrisomy21.eu\/fi\/wp-json\/wp\/v2\/media?parent=31286"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}