{"id":31286,"date":"2021-03-03T19:33:11","date_gmt":"2021-03-03T18:33:11","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?page_id=31286"},"modified":"2026-04-02T02:06:04","modified_gmt":"2026-04-02T00:06:04","slug":"privacy-policy","status":"publish","type":"page","link":"https:\/\/eufortrisomy21.eu\/fr\/privacy-policy\/","title":{"rendered":"Privacy Policy \u2013 Confidentiality and Personal Data Management"},"content":{"rendered":"

\n\t\t\t\t<\/h1>\n\t

The purpose of this confidentiality policy is to define the principles and guidelines implemented by EU for Trisomy 21 in the framework of the “UE pour la trisomie 21<\/em>” label and to affirm its commitment to preserve as far as possible the confidentiality, integrity and security of the data we collect in the context of our activities and missions.<\/p>\n

Le but de cette politique est de vous informer sur la mani\u00e8re dont nous collectons et traitons vos donn\u00e9es personnelles conform\u00e9ment \u00e0 la r\u00e9glementation.<\/p>\n

We invite you to regularly review this policy, which may be updated and supplemented. EU for Trisomy 21 , within the framework of the “EU for Trisomy 21” label, will bring any new version to your attention by any means of its choice, including online or by e-mail.<\/p>\n

This Privacy Policy applies to the EU for Trisomy 21 website and to users who access our services, including by logging in via Facebook (Meta).<\/p>\n

Qui collecte vos donn\u00e9es?<\/h3>\n

The present policy concerns exclusively the processing implemented by EU for Trisomy 21, within the framework of the “UE pour la trisomie 21<\/em>” label. EU for Trisomy 21, represented by its legal representative, Antonio Rosique 13, Clos des Pervenches 1300 – Limal (Belgium), is responsible for the processing.<\/p>\n

 <\/p>\n

Quelles donn\u00e9es collectons-nous?<\/h3>\n

We collect personal data necessary for the operation of our website, user accounts, events, projects, and related activities. The information is communicated by sending online registration forms, directly accessible on our website. It may also be communicated indirectly by third parties who are linked or in contact with us. In this case, the persons concerned will be informed by e-mail of the data collected about them. They will have the possibility to have access to it and to oppose it.<\/p>\n

Nous pouvons ainsi \u00eatre amen\u00e9s \u00e0 collecter diverses donn\u00e9es en fonction des finalit\u00e9s consid\u00e9r\u00e9es telles que:<\/p>\n

    \n
  • Identification data: surname, first name, postal and e-mail address, telephone number, date of birth, postal code, country …<\/li>\n
  • Personal life data: family situation, description (what you like, your hobbies…), photo…<\/li>\n
  • NGO data: website, social networks, purpose of your association…<\/li>\n<\/ul>\n

     <\/p>\n

    Sur quelle base et pourquoi utilisons-nous vos donn\u00e9es?<\/h3>\n

    All processing carried out by EU for Trisomy 21, within the framework of the “UE pour la trisomie 21<\/em>” label, has a legal basis in accordance with article 6 of the RGPD, and is mainly based on our legitimate interest and your consent. However, they may also be based on one of the other legal bases provided for in Article 6.<\/p>\n

    Ainsi, les donn\u00e9es sont principalement collect\u00e9es pour:<\/p>\n

      \n
    • Allow the operation of our website, user accounts, events, projects, communication activities, and related services,<\/li>\n
    • Communiquer et informer les participants des activit\u00e9s organis\u00e9es lors de ces \u00e9v\u00e9nements,<\/li>\n
    • Faciliter les relations avec les d\u00e9put\u00e9s europ\u00e9ens, les citoyens et les ONG,<\/li>\n
    • Respectez les obligations l\u00e9gales.<\/li>\n<\/ul>\n

       <\/p>\n

      Combien de temps conservons-nous vos donn\u00e9es?<\/h3>\n

      Dans le cadre de la “EU for Trisomy 21<\/em>” label, the EU for Trisomy 21 association keeps your personal data for the time necessary for the operations for which they were collected and in compliance with the regulations in force, it being specified that :<\/p>\n

        \n
      • Personal data is kept only for as long as necessary for the purposes for which it was collected and to comply with applicable legal obligations.<\/li>\n
      • Cookies deposited on the Internet user’s terminal are kept for a period of thirteen (13) months from their first deposit in the user’s terminal equipment.<\/li>\n
      • En cas de recours contre un tiers ou de litige, vos donn\u00e9es personnelles peuvent \u00eatre conserv\u00e9es jusqu'\u00e0 l'expiration de toutes les voies de recours.<\/li>\n<\/ul>\n

         <\/p>\n

        No data transfer is made. In the event of an unsatisfactory response, you may file a complaint with the Cnil (Commission nationale de l’informatique et des libert\u00e9s), the French body responsible for ensuring the protection of personal data.<\/p>\n

         <\/p>\n

        Qui a acc\u00e8s \u00e0 vos donn\u00e9es?<\/h3>\n

        The data is only communicated to the association EU for Trisomy 21 within the framework of the “EU for Trisomy 21” label, to our volunteers and to our service providers. We make every effort to ensure that only authorized persons within the framework of the strict fulfillment of the purpose pursued and our legal obligations can have access to the data we process.<\/p>\n

        Afin d'assurer l'efficacit\u00e9 et la s\u00e9curit\u00e9 de nos traitements, nous pouvons les communiquer \u00e0 des destinataires externes, des prestataires de services et des conseils professionnels, par exemple pour la maintenance et la s\u00e9curit\u00e9 informatique, l'h\u00e9bergement, la gestion et la maintenance de nos sites Web, l'envoi d'emails, l'organisation et la gestion de la communication. campagnes, etc.<\/p>\n

         <\/p>\n

        O\u00f9 sont stock\u00e9es vos donn\u00e9es?<\/h3>\n

        Vos donn\u00e9es personnelles sont stock\u00e9es sur nos serveurs internes en France.<\/p>\n

        Quelles sont les cons\u00e9quences si certaines informations ne sont pas communiqu\u00e9es?<\/p>\n

        Nous pr\u00e9cisons dans nos formulaires les informations obligatoires au regard de la finalit\u00e9 principale poursuivie par l'apposition d'un ast\u00e9risque.<\/p>\n

         <\/p>\n

        Quelles mesures de s\u00e9curit\u00e9 mettons-nous en \u0153uvre?<\/h3>\n

        EU for Trisomy 21, within the framework of the “EU for Trisomy 21” label, is committed to treating the personal data it collects with the utmost care and attention and implements technical, physical and organizational measures to prevent, as far as possible, any disclosure, alteration or unavailability. We also implement a policy of minimization by reducing the scope of data collection to what is strictly necessary.<\/p>\n

         <\/p>\n

        Quels sont vos droits?<\/h3>\n

        Conform\u00e9ment au r\u00e8glement g\u00e9n\u00e9ral sur la protection des donn\u00e9es 2016\/679, vous disposez d'un droit d'information, d'acc\u00e8s et de copie, de rectification et de mise \u00e0 jour, de suppression, de portabilit\u00e9 des donn\u00e9es vous concernant sous r\u00e9serve que les conditions d'application de ces droits soient remplies.<\/p>\n

        Dans les m\u00eames conditions, vous disposez \u00e9galement, en fonction de la base l\u00e9gale du traitement, du droit de limiter et de vous opposer au traitement des donn\u00e9es vous concernant. Vous pouvez \u00e9galement retirer votre consentement au traitement \u00e0 tout moment si le traitement est effectu\u00e9 sur cette base l\u00e9gale et \u00e0 condition que le traitement ne soit pas \u00e9galement bas\u00e9 sur une autre base l\u00e9gale.<\/p>\n

        Conform\u00e9ment \u00e0 l'article 40-1 de la loi Informatique et Libert\u00e9s, vous avez \u00e9galement la possibilit\u00e9 de donner des instructions concernant la conservation, la suppression et la communication de vos donn\u00e9es personnelles apr\u00e8s votre d\u00e9c\u00e8s.<\/p>\n

        Nous vous informons que vous avez le droit d'introduire une r\u00e9clamation aupr\u00e8s de la CNIL si vous estimez, apr\u00e8s nous avoir contact\u00e9s, que vos droits relatifs \u00e0 la protection des donn\u00e9es ne sont pas respect\u00e9s.<\/p>\n

         <\/p>\n

        Qui contacter pour plus d'informations ou pour exercer vos droits?<\/h3>\n

        Vous pouvez, sous r\u00e9serve de la production d'une pi\u00e8ce d'identit\u00e9 valable, exercer vos droits en nous contactant:<\/p>\n

        o By mail: Association EU for Trisomy 21 – 13, Clos des Pervenches 1300 – Limal (Belgium)<\/p>\n

        o Par e-mail: contact@eufortrisomy21.eu<\/p>\n

         <\/p>\n

        \u00c0 propos des cookies<\/h3>\n

        Afin de vous garantir une meilleure exp\u00e9rience, ce site n'utilise que des cookies pour surveiller le trafic et la fluidit\u00e9 de navigation (Google Analytics). Ces cookies ne sont pas utilis\u00e9s \u00e0 des fins publicitaires ou commerciales. En poursuivant votre navigation sur ce site, vous acceptez cette utilisation.<\/p>\n

         <\/p>\n

        What is a “cookie”?<\/h3>\n

        A “cookie” is a file of limited size, usually consisting of letters and numbers, sent by the web server to the cookie file of the browser located on the hard drive of your computer. These features use third-party cookies directly deposited by these services.<\/p>\n

        Vous pouvez \u00e0 tout moment vous informer et param\u00e9trer vos cookies pour les accepter ou les refuser dans votre navigateur Internet. Vous pourrez indiquer votre pr\u00e9f\u00e9rence soit globalement pour le site, soit par page.<\/p>\n

        Ces cookies sont g\u00e9n\u00e9r\u00e9s automatiquement par la plateforme d'exploitation, l'Association UE pour la Trisomie 21 n'intervient pas dans leur g\u00e9n\u00e9ration.<\/p>\n

        Cependant, selon les plateformes utilis\u00e9es, vous avez la possibilit\u00e9 de vous y opposer, de les supprimer \u00e0 l'aide des param\u00e8tres de votre navigateur ou m\u00eame de les bloquer.<\/p>\n

         <\/p>\n

        Confidentialit\u00e9 et droits \u00e0 l'image<\/h3>\n

        Dans nos formulaires d'inscription, il peut vous \u00eatre demand\u00e9 de fournir une photographie (non obligatoire), qui sera publi\u00e9e sur ce site et \/ ou sur les r\u00e9seaux sociaux de “EU for Trisomy 21”.<\/em> Celles-ci sont diffus\u00e9es avec l'accord des personnes concern\u00e9es, qui ont le droit de retirer leur consentement \u00e0 tout moment.<\/p>\n

        The procedures for exercising this right are identical to those relating to the processing of personal data, i.e. by writing to the personal data protection manager of the EU for Trisomy 21 association by post at the following postal address: Association EU for Trisomy 21 – 13, Clos des Pervenches 1300 – Limal (Belgium)\u00a0 or by e-mail at the following address: contact@eufortrisomy21.eu accompanied by a copy of a valid identity card.<\/p>\n

         <\/p>\n

        Use of Facebook (Meta) Login<\/h3>\nOur website allows users to create an account or log in using Facebook Login, a service provided by Meta Platforms, Inc.\nWhen you choose to log in with Facebook, we receive certain personal data from Meta, depending on your Facebook privacy settings and the permissions you grant. This typically includes your name, email address, and a unique Facebook user ID.\nWe use this data solely to:\n
          \n
        • \nauthenticate you on our website,\n<\/li>\n
        • \ncreate or manage your user account, and\n<\/li>\n
        • \ncommunicate with you in relation to our activities and services.\n<\/li>\n<\/ul>\nWe do not receive your Facebook password and we do not use Facebook Login data for advertising purposes.\nYou may revoke our access to your Facebook data at any time through your Facebook account settings. To request deletion of data we have received via Facebook Login, you may contact us using the details provided in the “Who to contact” section of this policy.\n

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