{"id":33908,"date":"2025-01-27T16:36:48","date_gmt":"2025-01-27T15:36:48","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?p=33908"},"modified":"2025-03-19T08:40:04","modified_gmt":"2025-03-19T07:40:04","slug":"world-down-syndrome-day-2025","status":"publish","type":"post","link":"https:\/\/eufortrisomy21.eu\/it\/world-down-syndrome-day-2025\/","title":{"rendered":"World Down Syndrome Day 2025: From Projects to Policies &#8211; Including People with Down Syndrome in Europe"},"content":{"rendered":"<p class=\"translation-block\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-33952 size-large alignright\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1-724x1024.png\" alt=\"\" width=\"724\" height=\"1024\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1-724x1024.png 724w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1-212x300.png 212w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1-768x1086.png 768w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1-1086x1536.png 1086w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1-8x12.png 8w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/Journee-Mondiale-de-la-Trisomie-21-De-la-Recherche-aux-Politiques-publiques-Inclure-les-Personnes-Porteuses-de-Trisomie-21-en-Europe-1.png 1414w\" sizes=\"(max-width: 724px) 100vw, 724px\"><b>Brussels, Belgium<\/b><span style=\"font-weight: 400;\"> \u2014 On March 19, 2025, <\/span><b>EU for Trisomy 21<\/b><span style=\"font-weight: 400;\"> invited by various Members of the European Parliament (MEPs), will host a major event in the <\/span><b>European Parliament<\/b><span style=\"font-weight: 400;\"> to mark <\/span><b>World Down Syndrome Day<\/b><span style=\"font-weight: 400;\">. This year\u2019s theme, \u201cFrom Projects to Policies: Including People with Down Syndrome in Europe,\u201d aims to foster a more inclusive Europe for individuals with Down syndrome where their opinions are taken into the European policy debates.<\/span><\/p>\n<p data-pm-slice=\"1 1 []\">As part of broader efforts to raise awareness and engage local communities, this event will serve as a key milestone in the <strong>European Self Advocacy Project<\/strong>, UN <strong>Erasmus+<\/strong> sponsored initiative dedicated to empowering individuals with Down syndrome and intellectual disabilities.<\/p>\n<h3>Coffee &amp; Socks<\/h3>\n<p><span style=\"font-weight: 400;\">The day will kick off at <strong>09<\/strong><\/span><b>:30 AM<\/b><span style=\"font-weight: 400;\"> with a special coffee service, where <\/span><b>waiters with Down Syndrome<\/b><span style=\"font-weight: 400;\"> will showcase their professional skills as servers for the day in the official coffee places of the European Parliament. They will be working in the <strong>Forum Bar<\/strong> (<\/span>VoxBox bar)<span style=\"font-weight: 400;\"> e <strong>Hemicycle bar<\/strong> (<\/span>Mickey Mouse Cafe)<span style=\"font-weight: 400;\"> in the European Parliament. <\/span>This collaboration provides a platform for people with Down syndrome to demonstrate their professional abilities to <strong>European legislators<\/strong>, highlighting the importance of <strong>employment opportunities<\/strong> and the contributions individuals with Down syndrome bring to the workforce.<\/p>\n<p><span style=\"font-weight: 400;\">MEPs will also have the chance to visit an <strong>information stand<\/strong> to take a picture showing their support to <strong>Giornata mondiale della sindrome di Down<\/strong>, wearing mismatched socks, raising awareness on how people with Down Syndrome may be different but still they enrich our society.<\/span><\/p>\n<p data-pm-slice=\"1 1 []\">At <strong>11:45 A<\/strong><strong>M<\/strong>, the event will officially open with a brief ceremony with our host <strong>MEP Miriam Lexmann<\/strong> who invited various other <strong>Membri del Parlamento Europeo<\/strong>\u00a0to participate, engage with <strong>self-advocates<\/strong> e <strong>partner organizations<\/strong>, and show their support for the cause.<\/p>\n<p data-pm-slice=\"1 1 []\">The afternoon will be dedicated to a <strong>conference<\/strong> starting at <strong>2:00 PM<\/strong> In <strong>Room ASP 1H1<\/strong>, focusing on key issues such as <strong>equality, health, employment,<\/strong> e <strong>self-advocacy<\/strong> for people with Down syndrome. The conference will bring together <strong>policymakers, researchers, healthcare professionals,<\/strong> e <strong>self-advocates<\/strong> to discuss <strong>successful projects, research,<\/strong> e <strong>future EU policies<\/strong> that promote <strong>full inclusion, autonomy,<\/strong> e <strong>opportunities<\/strong> for people with Down syndrome.<\/p>\n<h3 data-pm-slice=\"1 1 []\">Conference: From Projects to Policies<\/h3>\n<p class=\"translation-block\">The <strong>conference<\/strong> will be co-hosted by <strong>MEPs Romana Jerkovic and Paolo Inselvini<\/strong>.<\/p>\n<ul>\n<li><span class=\"s10\">Opening words: <\/span><span class=\"s10\">Paolo <\/span><span class=\"s10\">Inselvini<\/span><span class=\"s10\">, Member of the European Parliament<\/span><\/li>\n<\/ul>\n<p>The first part of the conference will be co- hosted by <strong>Antonio Rosique<\/strong> and EDSA Self-Advocate <strong>Ivan Kos<\/strong> from Croatia.<\/p>\n<ul>\n<li>&#8220;Including the voices of people with down syndrome in the<span class=\"s10\"> European Society<\/span>\n<ul>\n<li>European S<span class=\"s10\">elf-Advocates<\/span><span class=\"s10\">: <\/span><span class=\"s10\">Fiona<\/span> <span class=\"s10\">Lambart<\/span><span class=\"s10\"> Self-advocate and Katrina Lambart from BVDS &amp; EU for Trisomy 21<\/span><\/li>\n<li>\u201c<span class=\"s10\">Valueable<\/span><span class=\"s10\">\u201d<\/span><span class=\"s10\"> Project: Dinka Vukovic <\/span><span class=\"s10\">\u2013<\/span><span class=\"s10\"> president of E<\/span><span class=\"s10\">uropean Down Syndrome Association<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li><span class=\"s10\">Inclusion in the EU: Katrin <\/span><span class=\"s10\">Langensiepen<\/span> <span class=\"s10\">\u2013<\/span><span class=\"s10\"> MEP <\/span><span class=\"s10\">Co-<\/span><span class=\"s10\">Chair of the Intergroup on Disabilities<\/span><span class=\"s10\">(TBC)<\/span><\/li>\n<li>Q&amp;A and short break<\/li>\n<\/ul>\n<p>The second part of the conference will be hosted by <span class=\"s10\"><strong>Marie-Claude Potier<\/strong>, President of Trisomy 21 Research<\/span><span class=\"s10\"> Society<\/span><\/p>\n<ul>\n<li class=\"s12\"><span class=\"s10\">Research improving lives of people with Down Syndrome in Europe<\/span>\n<ul>\n<li class=\"s12\">Respire 21 Project: <span class=\"s10\">Pr<\/span><span class=\"s10\"> MD Brigitte <\/span><span class=\"s10\">Fauroux<\/span><span class=\"s10\">, Necker Hospital for children<\/span><\/li>\n<li class=\"s12\">ICOD<span class=\"s10\"> project<\/span><span class=\"s10\">:<\/span> <span class=\"s10\">Pier Vincenzo Piazza, CEO <\/span><span class=\"s10\">Aelis<\/span> <span class=\"s10\">Farma<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li>From projects to policy<span class=\"s10\"> in the European Union<\/span>\n<ul>\n<li>Guillaume <span class=\"s10\">Duriez<\/span><span class=\"s10\">, Director of the Medical <\/span><span class=\"s10\">Insitut<\/span><span class=\"s10\"> J<\/span><span class=\"s10\">\u00e9<\/span><span class=\"s10\">r<\/span><span class=\"s10\">\u00f4<\/span><span class=\"s10\">me Lejeune<\/span><\/li>\n<li>Romana <span class=\"s10\">Jerkovic<\/span><span class=\"s10\">, MEP Vice-Chair of Public Health subcommittee<\/span><\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<ul>\n<li>\n<div class=\"s15\"><span class=\"s10\">Conclusion:<\/span><span class=\"s10\"> Jos<\/span><span class=\"s10\">\u00e9<\/span><span class=\"s10\"> Guti<\/span><span class=\"s10\">\u00e9<\/span><span class=\"s10\">rrez, <\/span><span class=\"s10\">Vice-president<\/span><span class=\"s10\"> of <\/span><span class=\"s10\">European<\/span><span class=\"s10\"> Associazione Sindrome di Down<\/span><\/div>\n<\/li>\n<li>\n<div class=\"s15\"><span class=\"s10\">Q<\/span><span class=\"s10\">&amp;A<\/span><\/div>\n<\/li>\n<\/ul>\n<p data-pm-slice=\"1 1 []\" class=\"translation-block\">The event will conclude with a <strong>dynamic Q&amp;A session<\/strong>, offering attendees the chance to engage directly with speakers and discuss the <strong>critical steps<\/strong> needed to move from <strong>successful individual projects<\/strong> to <strong>coherent, systematic,<\/strong> and <strong>serious public policies<\/strong> that ensure <strong>people with Down syndrome<\/strong> are fully included as <strong>equal citizens in Europe<\/strong>.<\/p>\n<p><b>What:<\/b><b><br \/>\n<\/b><span style=\"font-weight: 400;\"><strong>World Down Syndrome Day Celebration<\/strong> &#8211; &#8220;From Projects to Policies: Including People with Down Syndrome in Europe&#8221;<\/span><\/p>\n<p><b>When:<\/b><b><br \/>\n<\/b><span style=\"font-weight: 400;\">March 19, 2025<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Coffee Service: 09:30 AM<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Ceremony: 12:30 PM<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Conference: 14:00 PM<\/span><\/p>\n<p><b>Where:<\/b><b><br \/>\n<\/b><span style=\"font-weight: 400;\">European Parliament, Brussels, Belgium<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\"><strong>F<\/strong><strong style=\"font-weight: 400;\">orum Bar<\/strong>\u00a0e <strong style=\"font-weight: 400;\">Hemicycle bar<\/strong>\u00a0<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">Room ASP 1H1<\/span><\/p>\n<p data-pm-slice=\"1 1 []\" class=\"translation-block\"><strong>Apply <a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSeHuyCLSObIexLr9NJI8ez9YHGV8w-oEmlkEh5euDfrJ8ywLw\/viewform?usp=dialog\" target=\"_self\">here<\/a> to attend the meeting. Please fill out the form so we can organise the entrance to the European Parliament for you.<\/strong><\/p>\n<p class=\"translation-block\"><span style=\"font-weight: 400;\">This event will emphasize the need for the European Union to move from <\/span><b>supporting individual projects<\/b><span style=\"font-weight: 400;\"> to implementing <\/span><b>comprehensive, long-term policies<\/b><span style=\"font-weight: 400;\"> that have a profound impact on the lives of people with Down syndrome. The focus will be on ensuring <\/span><b>equal opportunities<\/b><span style=\"font-weight: 400;\">, full inclusion in <\/span><b>healthcare<\/b><span style=\"font-weight: 400;\">, <\/span><b>political participation<\/b><span style=\"font-weight: 400;\">, and <\/span><b>employment<\/b><span style=\"font-weight: 400;\">, and fostering <\/span><b>accessible environments<\/b><span style=\"font-weight: 400;\"> for people with Down syndrome. It will highlight the <\/span><b>valuable contributions<\/b><span style=\"font-weight: 400;\"> of people with Down syndrome and stress the critical role the EU must play in fostering a more <\/span><b>inclusive Europe<\/b><span style=\"font-weight: 400;\"> through <\/span><b>systematic and effective policies<\/b><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p class=\"translation-block\">Taking place as part of a 30-day online awareness campaign leading up to <strong>World Down Syndrome Day<\/strong>, this event further reinforces the visibility and impact of the European Self Advocacy Project across Europe. Through media outreach, online advocacy, and local engagements, the campaign highlights the need to move beyond isolated initiatives and toward long-term policies that promote full inclusion and equal opportunities for people with Down syndrome in employment, healthcare, and political participation.<\/p>\n<p><b>About World Down Syndrome Day<\/b><\/p>\n<p><span style=\"font-weight: 400;\">World Down Syndrome Day, observed annually on March 21, is a global event to raise awareness about Down syndrome and promote the inclusion of individuals with Down syndrome in all aspects of society. The celebration advocates for equal rights, healthcare, and opportunities for people with Down syndrome, while encouraging greater understanding and inclusion.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">For media inquiries or additional information, please contact: contact@eufortrisomy21.eu<\/span><\/p>\n<p class=\"translation-block\">If you want to attend the event, <a href=\"https:\/\/docs.google.com\/forms\/d\/e\/1FAIpQLSeHuyCLSObIexLr9NJI8ez9YHGV8w-oEmlkEh5euDfrJ8ywLw\/viewform?usp=dialog\" target=\"_self\">please fill out this form<\/a> so we can organise your entry into the European Parliament. Deadline 11th of March.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33936\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs.png\" alt=\"\" width=\"86\" height=\"86\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs.png 423w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs-300x300.png 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs-150x150.png 150w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/logo_t21rs-12x12.png 12w\" sizes=\"(max-width: 86px) 100vw, 86px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33933\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo.jpg\" alt=\"\" width=\"166\" height=\"77\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo.jpg 991w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo-300x139.jpg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo-768x356.jpg 768w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/WDSD-logo-18x8.jpg 18w\" sizes=\"(max-width: 166px) 100vw, 166px\" \/> <img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33935\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511.jpg\" alt=\"\" width=\"247\" height=\"60\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511.jpg 407w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511-300x73.jpg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/1604394511-18x4.jpg 18w\" sizes=\"(max-width: 247px) 100vw, 247px\" \/> \u00a0<img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33932\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text.jpeg\" alt=\"\" width=\"131\" height=\"77\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text.jpeg 320w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text-300x176.jpeg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/01\/edsa-logo_with-text-18x12.jpeg 18w\" sizes=\"(max-width: 131px) 100vw, 131px\" \/><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-33928\" src=\"http:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-1024x215.jpg\" alt=\"\" width=\"309\" height=\"65\" srcset=\"https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-1024x215.jpg 1024w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-300x63.jpg 300w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-768x161.jpg 768w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-1536x322.jpg 1536w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-2048x430.jpg 2048w, https:\/\/eufortrisomy21.eu\/wp-content\/uploads\/2025\/02\/EN-Co-funded-by-the-EU_BLACK-Outline-18x4.jpg 18w\" sizes=\"(max-width: 309px) 100vw, 309px\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>Brussels, Belgium \u2014 On March 19, 2025, EU for Trisomy 21 invited by various Members of the European Parliament (MEPs),&hellip;<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[45],"tags":[],"class_list":["post-33908","post","type-post","status-publish","format-standard","hentry","category-21-march-21"],"acf":[],"_links":{"self":[{"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/posts\/33908"}],"collection":[{"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/comments?post=33908"}],"version-history":[{"count":26,"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/posts\/33908\/revisions"}],"predecessor-version":[{"id":33967,"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/posts\/33908\/revisions\/33967"}],"wp:attachment":[{"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/media?parent=33908"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/categories?post=33908"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/it\/wp-json\/wp\/v2\/tags?post=33908"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}