{"id":33345,"date":"2022-12-07T18:00:43","date_gmt":"2022-12-07T17:00:43","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?p=33345"},"modified":"2024-02-20T17:22:44","modified_gmt":"2024-02-20T16:22:44","slug":"the-future-is-ours-time-for-more-autonomy","status":"publish","type":"post","link":"https:\/\/eufortrisomy21.eu\/sk\/the-future-is-ours-time-for-more-autonomy\/","title":{"rendered":"Bud\u00facnos\u0165 je na\u0161a \u2013 \u010das na v\u00e4\u010d\u0161iu auton\u00f3miu"},"content":{"rendered":"<p>Odkaz na YouTube: <a href=\"https:\/\/www.youtube.com\/watch?v=j2QFE6f5QPY\">ma\u010far\u010dina (ma\u010far\u010dina)<\/a>, <a href=\"https:\/\/www.youtube.com\/watch?v=y754i2Gk5jk\">r\u00f3m\u010dina (rumun\u010dina)<\/a>, <a href=\"https:\/\/www.youtube.com\/watch?v=imPvo3tS7l8\">Fran\u00e7ais (franc\u00faz\u0161tina)<\/a>, <a href=\"https:\/\/www.youtube.com\/watch?v=ZjAbSg9kFG0\">nem\u010dina (nem\u010dina)<\/a>, <a href=\"https:\/\/www.youtube.com\/watch?v=-KLPE1gQVC4\">polski (polski)<\/a>, <a href=\"https:\/\/www.youtube.com\/watch?v=MgHYTZBAlyE\">\u03b5\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ac (gr\u00e9\u010dtina)<\/a><\/p>\n<p>M\u00f4\u017eete si pozrie\u0165 na\u0161u ofici\u00e1lnu spr\u00e1vu <a href=\"https:\/\/drive.google.com\/file\/d\/1yMfOOM1MKX2PptIr70ZjFIDLy8B5rYdU\/view?usp=sharing\">tu<\/a>.<\/p>\n<p>D\u0148a 7<sup>th<\/sup> decembra 2022 EU for Trisomy 21 hostila prv\u00e9 podujatie n\u00e1\u0161ho projektu Bud\u00facnos\u0165 je na\u0161a s n\u00e1zvom \u201e\u010cas na viac AUTON\u00d3MY\u201c sponzorovan\u00e9ho E\u00da.<\/p>\n<p><span style=\"font-weight: 400;\">V septembri 2022 z\u00edskala sie\u0165 E\u00da pre triz\u00f3miu 21 pe\u0148a\u017en\u00fa podporu prostredn\u00edctvom grantov\u00e9ho programu EU CERV, \u010d\u00edm sa spustil projekt s n\u00e1zvom Bud\u00facnos\u0165 je na\u0161a. Tento projekt zah\u0155\u0148a 3 online podujatia, ako aj \u010fal\u0161ie osobn\u00e9 podujatie v m\u00e1ji 2023 v Bruseli. Ka\u017ed\u00e9 podujatie sa zameria na jeden zo \u0161tyroch cie\u013eov E\u00da pre sie\u0165 Trisomy 21:<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u2013 Auton\u00f3mia, \u010co to znamen\u00e1 pre \u013eud\u00ed s Downov\u00fdm syndr\u00f3mom by\u0165 nez\u00e1visl\u00ed a rozhodova\u0165 sa?\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u2013 Vidite\u013enos\u0165, \u010do pre People Downov syndr\u00f3m znamen\u00e1 by\u0165 viden\u00fd a po\u010dut\u00fd\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u2013 Zdravie, V\u00fdznam dobr\u00fdch lek\u00e1rov a podpory zdravia\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u2013 Rovnak\u00e9 zaobch\u00e1dzanie, \u010do znamen\u00e1 re\u0161pektovanie \u013eud\u00ed s Downov\u00fdm syndr\u00f3mom<\/span><\/p>\n<p>Prv\u00e9 podujatie tohto projektu \u201eTime for more AUTONOMY\u201c sa konalo online v r\u00e1mci sie\u0165ovej oslavy Medzin\u00e1rodn\u00e9ho d\u0148a pr\u00e1v \u013eud\u00ed so zdravotn\u00fdm postihnut\u00edm d\u0148a 3.<sup>rd<\/sup> decembra 2022.<\/p>\n<p>\u201eTime for more AUTONOMY\u201c predstavilo 5 sebaobhajcov z 5 r\u00f4znych kraj\u00edn, ktor\u00ed hovorili o d\u00f4le\u017eitosti auton\u00f3mneho \u017eivota. Bola prelo\u017een\u00e1 do 9 jazykov (angli\u010dtina, ma\u010far\u010dina, rumun\u010dina, franc\u00faz\u0161tina, nem\u010dina, po\u013e\u0161tina, gr\u00e9\u010dtina a \u0161paniel\u010dina) a z\u00fa\u010dastnilo sa jej viac ako 400 \u00fa\u010dastn\u00edkov z 22 kraj\u00edn (16 kraj\u00edn E\u00da).<\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Prv\u00fdm re\u010dn\u00edkom na podujat\u00ed bol<strong> Soufiane El Amrani<\/strong>, an<\/span><\/span> \u013eahko \u010ditate\u013en\u00fd odborn\u00edk na advok\u00e1ciu pracuj\u00faci v organiz\u00e1cii Inclusion Europe od roku 2008. V r\u00e1mci tejto pr\u00e1ce poskytol mno\u017estvo \u0161kolen\u00ed v oblasti spr\u00edstup\u0148ovania inform\u00e1ci\u00ed a ako konzultova\u0165 s \u013eu\u010fmi s ment\u00e1lnym postihnut\u00edm rozhodnutia, ktor\u00e9 ich ovplyv\u0148uj\u00fa. Je tie\u017e s\u00fa\u010das\u0165ou Eur\u00f3pskej platformy sebaobhajcov a t\u00edmu Empower Us. Od novembra 2020 je Soufiane z\u00e1stupcom sebaobhajcov pre Eur\u00f3pu v Council of Inclusion International.<\/p>\n<p>Po\u010das podujatia \u201eTime for more AUTONOMY\u201c hovoril o auton\u00f3mii \u013eud\u00ed so zdravotn\u00fdm postihnut\u00edm v r\u00e1mci E\u00da, pri\u010dom sa zameral na nadch\u00e1dzaj\u00facu zmenu volebn\u00e9ho z\u00e1kona, ktor\u00fd \u013eu\u010fom s ment\u00e1lnym postihnut\u00edm, vr\u00e1tane \u013eud\u00ed s Downov\u00fdm syndr\u00f3mom, umo\u017en\u00ed voli\u0165 v nadch\u00e1dzaj\u00facom europoslancovi. vo\u013eby v roku 2024. Zv\u00fd\u0161il povedomie o tom, \u017ee zmena volebn\u00e9ho z\u00e1kona je s\u00edce dobr\u00fd krok, ale \u017ee E\u00da mus\u00ed zlep\u0161i\u0165 ich komunik\u00e1ciu, aby bola skuto\u010dne dostupn\u00e1 pre t\u00fato nov\u00fa skupinu voli\u010dov.<\/p>\n<p>Panel \u201eM\u00f4j auton\u00f3mny \u017eivot\u201c zah\u0155\u0148al \u0161tyroch sebaobhajcov z celej Eur\u00f3py:<\/p>\n<ul>\n<li>\n<p class=\"_04xlpA direction-ltr align-start para-style-body\"><span class=\"JsGRdQ\"><strong>Fanny Neumayer<\/strong>, 27 rokov a \u017eijem vo Viedni, <strong>Rak\u00fasko<\/strong>. <\/span><span class=\"JsGRdQ\">Pani Neumayer pracuje v riadite\u013estve Evanjelick\u00e9ho gymn\u00e1zia (stredn\u00e1 \u0161kola) v 11. obvode vo Viedni. <\/span><span class=\"JsGRdQ\">Porozpr\u00e1vala o svojich sk\u00fasenostiach z volieb v Rak\u00fasku.<\/span><\/p>\n<\/li>\n<li>\n<p class=\"_04xlpA direction-ltr align-start para-style-body\"><span class=\"JsGRdQ\"><strong>Fiona Lambartov\u00e1<\/strong>, 24 rokov a \u017eije v Darmstadte pri Frankfurte, <strong>Nemecko<\/strong>. <\/span><span class=\"JsGRdQ\">Pani Lambart pracuje ako \u0161pecialistka na upratovanie.<\/span><span class=\"JsGRdQ\">\u00a0Rozpr\u00e1vala o svojej pr\u00e1ci a o tom, ako sa dopracuje k auton\u00f3mnemu \u017eivotu.<\/span><\/p>\n<\/li>\n<li>\n<p class=\"_04xlpA direction-ltr align-start para-style-body\"><span class=\"JsGRdQ\"><strong>Frantzeska\u2013Christina Douka<\/strong>, 37-ro\u010dn\u00fd a \u017eije v Sol\u00fane, <strong>Gr\u00e9cko<\/strong>. Pani Douka je \u010dlenkou Gr\u00e9ckej asoci\u00e1cie Downovho syndr\u00f3mu a \u017eije sama v byte podporovan\u00e9ho b\u00fdvania. <\/span><span class=\"JsGRdQ\">Miluje tanec a je atl\u00e9tkou v oblasti rytmickej gymnastiky. Ve\u013eakr\u00e1t s\u00fa\u0165a\u017eila v Special Olympic&#039;s Organization, vyhrala medaily a cestovala po mnoh\u00fdch krajin\u00e1ch v Eur\u00f3pe aj mimo nej.<\/span><\/p>\n<\/li>\n<li>\n<p class=\"_04xlpA direction-ltr align-start para-style-body\"><span class=\"JsGRdQ\"><strong>Jean Phillipe Barone<\/strong>, 44-ro\u010dn\u00fd \u017eij\u00faci v Marseille, <strong>Franc\u00fazsko<\/strong>. \u017dije vo svojom byte v komunite a pracuje v upravenej re\u0161taur\u00e1cii. S komunika\u010dn\u00fdmi n\u00e1strojmi sa c\u00edti dobre a pravidelne reprezentuje asoci\u00e1ciu #Tcap21 prostredn\u00edctvom v\u0161etk\u00fdch m\u00e9di\u00ed. Teraz tr\u00e9nuje, aby sa pripojil k na\u0161ej otv\u00e1racej kaviarni #Train Inc. a potom dosiahol \u00fapln\u00fa auton\u00f3miu.<\/span><\/p>\n<\/li>\n<\/ul>\n<p>Po paneli mohli \u00fa\u010dastn\u00edci kl\u00e1s\u0165 ot\u00e1zky na\u0161im re\u010dn\u00edkom. Bro\u017e\u00fara s cit\u00e1tmi z ich prejavov, ako aj power point Soufiane <span style=\"font-weight: 400;\">El Amrani bolo spr\u00edstupnen\u00e9 pre v\u0161etk\u00fdch \u00fa\u010dastn\u00edkov. Toto sa d\u00e1 stiahnu\u0165 v angli\u010dtine <a href=\"https:\/\/drive.google.com\/file\/d\/1SVsLWWYytRREpmbalTXhit8NbVKCsVkB\/view?usp=share_link\">tu<\/a>.<\/span><\/p>\n<p>Po\u010das organiz\u00e1cie tohto podujatia, ako aj diskusie po\u010das podujatia a po \u0148om, zostavuje E\u00da pre triz\u00f3miu 21 zoznam odpor\u00fa\u010dan\u00ed, ktor\u00e9 m\u00e1 E\u00da zoh\u013eadni\u0165 pri pr\u00e1ci na tom, aby vo\u013eby do Eur\u00f3pskeho parlamentu v roku 2024 boli skuto\u010dne dostupn\u00e9 pre \u013eud\u00ed s Downov\u00fdm syndr\u00f3mom. Syndr\u00f3m vo v\u0161etk\u00fdch krajin\u00e1ch E\u00da. Tento dokument bude odovzdan\u00fd Komisii a Eur\u00f3pskemu parlamentu na Svetov\u00fd de\u0148 Downovho syndr\u00f3mu 21. marca 2023.<\/p>\n<p><strong>Na\u0161e \u010fal\u0161ie podujatie: Time for More Visibility sa uskuto\u010dn\u00ed 16. marca o 18:00.\u00a0<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>YouTube Link: Magyar (Hungarian), Rom\u00e2n (Romanian), Fran\u00e7ais (French), Deutsch (German), Polski (Polski), \u03b5\u03bb\u03bb\u03b7\u03bd\u03b9\u03ba\u03ac (Greek) You can take a look at&hellip;<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[45],"tags":[],"class_list":["post-33345","post","type-post","status-publish","format-standard","hentry","category-21-march-21"],"acf":[],"_links":{"self":[{"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/posts\/33345"}],"collection":[{"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/comments?post=33345"}],"version-history":[{"count":3,"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/posts\/33345\/revisions"}],"predecessor-version":[{"id":33626,"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/posts\/33345\/revisions\/33626"}],"wp:attachment":[{"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/media?parent=33345"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/categories?post=33345"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/sk\/wp-json\/wp\/v2\/tags?post=33345"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}