{"id":31286,"date":"2021-03-03T19:33:11","date_gmt":"2021-03-03T18:33:11","guid":{"rendered":"https:\/\/eufortrisomy21.eu\/?page_id=31286"},"modified":"2026-04-02T02:06:04","modified_gmt":"2026-04-02T00:06:04","slug":"privacy-policy","status":"publish","type":"page","link":"https:\/\/eufortrisomy21.eu\/sl\/privacy-policy\/","title":{"rendered":"Privacy Policy \u2013 Confidentiality and Personal Data Management"},"content":{"rendered":"<h1>\n\t\t\t\t<\/h1>\n\t<p>The purpose of this confidentiality policy is to define the principles and guidelines implemented by EU for Trisomy 21 in the framework of the &#8220;<em>EU za trizomijo 21<\/em>&#8221; label and to affirm its commitment to preserve as far as possible the confidentiality, integrity and security of the data we collect in the context of our activities and missions.<\/p>\n<p>Namen te politike je, da vas obve\u0161\u010damo o na\u010dinu, na katerega zbiramo in obdelujemo va\u0161e osebne podatke v skladu s predpisi.<\/p>\n<p>We invite you to regularly review this policy, which may be updated and supplemented. EU for Trisomy 21 , within the framework of the &#8220;EU for Trisomy 21&#8221; label, will bring any new version to your attention by any means of its choice, including online or by e-mail.<\/p>\n<p>This Privacy Policy applies to the EU for Trisomy 21 website and to users who access our services, including by logging in via Facebook (Meta).<\/p>\n<h3>Kdo zbira va\u0161e podatke?<\/h3>\n<p>The present policy concerns exclusively the processing implemented by EU for Trisomy 21, within the framework of the &#8220;<em>EU za trizomijo 21<\/em>&#8221; label. EU for Trisomy 21, represented by its legal representative, Antonio Rosique 13, Clos des Pervenches 1300 &#8211; Limal (Belgium), is responsible for the processing.<\/p>\n<p>&nbsp;<\/p>\n<h3>Katere podatke zbiramo?<\/h3>\n<p>We collect personal data necessary for the operation of our website, user accounts, events, projects, and related activities. The information is communicated by sending online registration forms, directly accessible on our website. It may also be communicated indirectly by third parties who are linked or in contact with us. In this case, the persons concerned will be informed by e-mail of the data collected about them. They will have the possibility to have access to it and to oppose it.<\/p>\n<p>Tako smo lahko prisiljeni zbirati razli\u010dne podatke glede na obravnavane namene, kot so:<\/p>\n<ul>\n<li>Identification data: surname, first name, postal and e-mail address, telephone number, date of birth, postal code, country &#8230;<\/li>\n<li>Personal life data: family situation, description (what you like, your hobbies&#8230;), photo&#8230;<\/li>\n<li>NGO data: website, social networks, purpose of your association&#8230;<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h3>Na podlagi \u010desa in zakaj uporabljamo va\u0161e podatke?<\/h3>\n<p>All processing carried out by EU for Trisomy 21, within the framework of the &#8220;<em>EU za trizomijo 21<\/em>&#8221; label, has a legal basis in accordance with article 6 of the RGPD, and is mainly based on our legitimate interest and your consent. However, they may also be based on one of the other legal bases provided for in Article 6.<\/p>\n<p>Tako se podatki zbirajo predvsem za:<\/p>\n<ul>\n<li>Allow the operation of our website, user accounts, events, projects, communication activities, and related services,<\/li>\n<li>Komunicirati in obve\u0161\u010dati udele\u017eence o dejavnostih, organiziranih na teh dogodkih,<\/li>\n<li>Olaj\u0161ati odnose z evropskimi poslanci, dr\u017eavljani in nevladnimi organizacijami,<\/li>\n<li>Upo\u0161tevajte zakonske obveznosti.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<h3>Kako dolgo hranimo va\u0161e podatke?<\/h3>\n<p>V okviru oz <em>&#8220;EU for Trisomy 21<\/em>&#8221; label, the EU for Trisomy 21 association keeps your personal data for the time necessary for the operations for which they were collected and in compliance with the regulations in force, it being specified that :<\/p>\n<ul>\n<li>Personal data is kept only for as long as necessary for the purposes for which it was collected and to comply with applicable legal obligations.<\/li>\n<li>Cookies deposited on the Internet user&#8217;s terminal are kept for a period of thirteen (13) months from their first deposit in the user&#8217;s terminal equipment.<\/li>\n<li>V primeru prito\u017ebe zoper tretjo osebo ali spora se lahko va\u0161i osebni podatki hranijo do izteka vseh mo\u017enosti prito\u017ebe.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>No data transfer is made. In the event of an unsatisfactory response, you may file a complaint with the Cnil (Commission nationale de l&#8217;informatique et des libert\u00e9s), the French body responsible for ensuring the protection of personal data.<\/p>\n<p>&nbsp;<\/p>\n<h3>Kdo ima dostop do va\u0161ih podatkov?<\/h3>\n<p>The data is only communicated to the association EU for Trisomy 21 within the framework of the &#8220;EU for Trisomy 21&#8221; label, to our volunteers and to our service providers. We make every effort to ensure that only authorized persons within the framework of the strict fulfillment of the purpose pursued and our legal obligations can have access to the data we process.<\/p>\n<p>Da bi zagotovili u\u010dinkovitost in varnost na\u0161e obdelave, jih lahko posredujemo zunanjim prejemnikom, ponudnikom storitev in strokovnim svetovanjem, na primer za vzdr\u017eevanje in varnost ra\u010dunalnika, gostovanje, upravljanje in vzdr\u017eevanje na\u0161ih spletnih mest, po\u0161iljanje e-po\u0161te, organizacijo in upravljanje komunikacije. kampanje itd.<\/p>\n<p>&nbsp;<\/p>\n<h3>Kje so shranjeni va\u0161i podatki?<\/h3>\n<p>Va\u0161i osebni podatki so shranjeni na na\u0161ih internih stre\u017enikih v Franciji.<\/p>\n<p>Kak\u0161ne so posledice, \u010de dolo\u010dene informacije niso sporo\u010dene?<\/p>\n<p>V na\u0161ih obrazcih navajamo obvezne podatke glede glavnega namena, ki ga zasleduje pritrditev zvezdice.<\/p>\n<p>&nbsp;<\/p>\n<h3>Katere varnostne ukrepe izvajamo?<\/h3>\n<p>EU for Trisomy 21, within the framework of the &#8220;EU for Trisomy 21&#8221; label, is committed to treating the personal data it collects with the utmost care and attention and implements technical, physical and organizational measures to prevent, as far as possible, any disclosure, alteration or unavailability. We also implement a policy of minimization by reducing the scope of data collection to what is strictly necessary.<\/p>\n<p>&nbsp;<\/p>\n<h3>Kak\u0161ne so va\u0161e pravice?<\/h3>\n<p>V skladu s Splo\u0161no uredbo o varstvu podatkov 2016\/679 imate pravico do informacij, dostopa in kopiranja, popravljanja in posodabljanja, brisanja, prenosljivosti podatkov, ki se nana\u0161ajo na vas, \u010de so izpolnjeni pogoji za uporabo teh pravic.<\/p>\n<p>Pod enakimi pogoji imate glede na pravno podlago obdelave tudi pravico omejiti in nasprotovati obdelavi podatkov, ki se nana\u0161ajo na vas. Svojo privolitev za obdelavo lahko tudi kadar koli prekli\u010dete, \u010de obdelava poteka na tej pravni podlagi in pod pogojem, da obdelava ne temelji tudi na drugi pravni podlagi.<\/p>\n<p>V skladu s \u010dlenom 40-1 francoskega zakona o varstvu podatkov imate tudi mo\u017enost dajati navodila glede shranjevanja, izbrisa in sporo\u010danja va\u0161ih osebnih podatkov po va\u0161i smrti.<\/p>\n<p>Obve\u0161\u010damo vas, da imate pravico do vlo\u017eitve prito\u017ebe pri CNIL, \u010de menite, da po stiku z nami niso spo\u0161tovane va\u0161e pravice v zvezi z varstvom podatkov.<\/p>\n<p>&nbsp;<\/p>\n<h3>Na koga se obrniti za ve\u010d informacij ali uveljavljanje svojih pravic?<\/h3>\n<p>Ob predlo\u017eitvi veljavnega dokazila o identiteti lahko svoje pravice uveljavljate tako, da nas kontaktirate:<\/p>\n<p>o By mail: Association EU for Trisomy 21 &#8211; 13, Clos des Pervenches 1300 &#8211; Limal (Belgium)<\/p>\n<p>o By e-mail: contact@eufortrisomy21.eu<\/p>\n<p>&nbsp;<\/p>\n<h3>O pi\u0161kotkih<\/h3>\n<p>Da bi vam zagotovili bolj\u0161o izku\u0161njo, to spletno mesto uporablja pi\u0161kotke samo za spremljanje prometa in teko\u010dnosti navigacije (Google Analytics). Ti pi\u0161kotki se ne uporabljajo v ogla\u0161evalske ali komercialne namene. \u010ce nadaljujete z brskanjem po tem spletnem mestu, sprejemate to uporabo.<\/p>\n<p>&nbsp;<\/p>\n<h3>What is a &#8220;cookie&#8221;?<\/h3>\n<p>A &#8220;cookie&#8221; is a file of limited size, usually consisting of letters and numbers, sent by the web server to the cookie file of the browser located on the hard drive of your computer. These features use third-party cookies directly deposited by these services.<\/p>\n<p>Kadar koli se lahko informirate in nastavite pi\u0161kotke, da jih sprejmete ali zavrnete v svojem spletnem brskalniku. Svoje \u017eelje boste lahko navedli bodisi globalno za spletno mesto bodisi po strani.<\/p>\n<p>Te pi\u0161kotke samodejno ustvari operacijska platforma, Zdru\u017eenje EU za trisomijo 21 ne ukrepa pri njihovem ustvarjanju.<\/p>\n<p>Vendar pa imate glede na uporabljene platforme mo\u017enost, da jim nasprotujete, jih izbri\u0161ete s parametri va\u0161ega brskalnika ali jih celo blokirate.<\/p>\n<p>&nbsp;<\/p>\n<h3>Zasebnost in pravice do slike<\/h3>\n<p>V na\u0161ih prijavnih obrazcih boste morda morali predlo\u017eiti fotografijo (ni obvezno), ki bo objavljena na tej spletni strani in\/ali dru\u017ebenih omre\u017ejih <em>&#8220;EU for Trisomy 21&#8221;.<\/em> Ti se delijo s soglasjem zadevnih oseb, ki imajo pravico kadar koli umakniti svojo privolitev.<\/p>\n<p>The procedures for exercising this right are identical to those relating to the processing of personal data, i.e. by writing to the personal data protection manager of the EU for Trisomy 21 association by post at the following postal address: Association EU for Trisomy 21 &#8211; 13, Clos des Pervenches 1300 &#8211; Limal (Belgium)\u00a0 or by e-mail at the following address: contact@eufortrisomy21.eu accompanied by a copy of a valid identity card.<\/p>\n<p>&nbsp;<\/p>\n<h3 data-start=\"3345\" data-end=\"3381\">Use of Facebook (Meta) Login<\/h3>\nOur website allows users to create an account or log in using Facebook Login, a service provided by Meta Platforms, Inc.\nWhen you choose to log in with Facebook, we receive certain personal data from Meta, depending on your Facebook privacy settings and the permissions you grant. This typically includes your name, email address, and a unique Facebook user ID.\nWe use this data solely to:\n<ul data-start=\"3785\" data-end=\"3938\">\n<li data-start=\"3785\" data-end=\"3821\">\nauthenticate you on our website,\n<\/li>\n<li data-start=\"3824\" data-end=\"3867\">\ncreate or manage your user account, and\n<\/li>\n<li data-start=\"3870\" data-end=\"3936\">\ncommunicate with you in relation to our activities and services.\n<\/li>\n<\/ul>\nWe do not receive your Facebook password and we do not use Facebook Login data for advertising purposes.\nYou may revoke our access to your Facebook data at any time through your Facebook account settings. To request deletion of data we have received via Facebook Login, you may contact us using the details provided in the &#8220;Who to contact&#8221; section of this policy.\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>The purpose of this confidentiality policy is to define the principles and guidelines implemented by EU for Trisomy 21 in&hellip;<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-31286","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/pages\/31286"}],"collection":[{"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/comments?post=31286"}],"version-history":[{"count":5,"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/pages\/31286\/revisions"}],"predecessor-version":[{"id":35036,"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/pages\/31286\/revisions\/35036"}],"wp:attachment":[{"href":"https:\/\/eufortrisomy21.eu\/sl\/wp-json\/wp\/v2\/media?parent=31286"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}