About the Project
For the past two years, EU for Trisomy 21 has been working on organising a series of online and in person events to shed the lights on the essential elements of our mission that consists on raising awareness and standing up for the rights of people with #Trisomy21 in Europe and beyond.
Budoucnost je naše is an EU sponsored project consisting of three online and one in-Person event between now and July 2023. With the EU elections coming up on 2024, and many people with Down Syndrome being allowed to vote in them for the first time, we want to take our time to highlight the four goals of EU for Trisomy 21: Autonomie, Viditelnost, Zdraví a Rovné zacházení.
One event at a time, EU for Trisomy 21 will make sure our EU wide Network is prepared for the upcoming elections - and even more important that they are prepared for us! We will give the floor to field experts, parents and decision makers, and most importantly to Self Advocates: People with Down Syndrome to share their own stories and experiences. Through our events, our participants will have the chance to meet, discuss and come up with concrete solutions in favour of making this world a better place for people with Down Syndrome.
And this is where all EU members are about to experience a big change . In May 2022 Members of the European Parliament (MEPs) adopted a new EU Electoral Law, in time for the European Parliament elections of 2024. This was then submitted to the Council of Ministers (our National Governments) as the final decision to change the EU electoral law has to be taken by Member States. The text approved by the MEPs reads:
“Every Union citizen from 16 years of age, including persons with disabilities regardless of their legal capacity, shall have the right to vote in elections to the European Parliament”.
While this is exciting news - until now people with a diminished legal capacity had only been able to vote in 8 European countries - the EU will have to work hard to adjust their communication and their accessibility to really empower people with disabilities to cast an informed vote in 2024.
Our event this December will be the first of many steps towards just that: making sure our EU wide Network is prepared for the upcoming elections - and even more important that they are prepared for us!
We will give the floor to field experts, parents and decision makers, and most importantly to Self Advocates. The question of Autonomy is much larger than just talking about the elections - we want to hear from People with Down Syndrome what living an autonomous live means for them, have them share their own stories and experiences.
Our event will take place on December 7th, at 18:00 CET (Paris Time) via Zoom. Take a look at our draft programme on the right. To participate you can sign up tady.
Time for more Autonomy
In celebration of International Day of Persons with Disabilities in early December, EU for Trisomy 21 will host the first of our Budoucnost je naše events: Time for more Autonomy.
Throughout our work with our partner organisations over the past few years we have realised that due to the different national laws and social systems across European countries, the level of autonomy people with disabilities can achieve varies drastically. So the question of what living an autonomous life means for people with Down Syndrome has been a topic of several debates. It is difficult to strike a balance between independence and assistance- but what it comes down to is this:
The Person with Down Syndrome must decide for themselves:
What do I want?
The support system is then responsible to help with the question:
How can I do this?
This applies to everything from living situations and work, to education and the question of how can I participate in the democratic process and make a difference for people like me?
Platforma pro spolupráci sdružení, občanů a politiků, kteří společně pracují na oslavě Světového dne Downova syndromu, aby zviditelnili intelektuální postižení obecně a zejména osoby s trizomií 21 (nejčastější mentální postižení genetického původu, nazývané také Downův syndrom ).