¿Qué es la UE para la trisomía 21?
A European initiative where organisations, citizens, and politicians work together to celebrate World Down Syndrome Day. Together, we raise awareness about intellectual disabilities, especially Trisomy 21, also called Down Syndrome, the most common genetic cause of intellectual disability.
EU for Trisomy 21 (EUFT21) is a European collaborative network bringing together organisations, families, professionals, and self-advocates who are committed to improving the lives of people with Down Syndrome, also known as Trisomy 21.
Our network includes many grassroots initiatives and organisations working close to people with Trisomy 21 and their families in their own countries and communities. By sharing experience, building common projects, and learning from one another, we create stronger European cooperation and help bring the voices and needs of people with Trisomy 21 into wider public and policy discussions.
EUFT21 works to promote the freedom, visibility, health, inclusion, and equal treatment of people with Trisomy 21. The European Union can play an important role in areas such as healthcare, employment, education, accessibility, and human rights. However, support for people with intellectual disabilities is still often too limited, and stronger action is needed to ensure that their rights and dignity are fully respected.
To make a change, EUFT21 works to:
- Stop discrimination and make sure people with Down Syndrome are treated fairly, with respect for their dignity and human rights.
- Help people with disabilities learn new skills, build confidence, and become more independent in their daily lives and communities.
- Create chances for people with Down Syndrome to speak for themselves and talk directly to EU leaders, decision-makers, and the wider public.
- Push for better laws, policies, and funding to support people with disabilities and their families across Europe.
- Make sure the EU keeps its promises to protect disability rights and includes people with intellectual disabilities in its work.
Our activities include training workshops, skill-building programmes, awareness-raising events, and dialogue with leaders in the European Parliament and other European institutions. We also help people with disabilities learn about their rights, express their views, and take part in decisions that affect their lives.
Our work supports important European commitments, including the EU Strategy for the Rights of Persons with Disabilities 2021–2030. Through our projects and advocacy, we work for a Europe where everyone has a voice, equal opportunities, and the support they need to participate fully in society.
Que hace UE para la trisomía 21 desear ?
Queremos que las necesidades de las personas con discapacidad intelectual se conviertan en una prioridad en la agenda europea para garantizar una igualdad real entre los ciudadanos.
Visibilidad
Las personas con discapacidad no están presentes en el entorno político, no están presentes en el mercado laboral ni en los medios de comunicación. Si las personas con discapacidad no son visibles en la sociedad, es imposible generar los cambios necesarios.
No discriminación
La legislación de la UE contra la discriminación ha avanzado mucho en los últimos años para los distintos grupos minoritarios, excepto para las personas con discapacidad. Las personas con discapacidad intelectual necesitan algunas adaptaciones especiales para garantizar que esas leyes y jurisprudencia las protejan y no solo en teoría.
Salud
La Unión Europea debe actuar en el mejor interés de las personas con discapacidad intelectual para garantizar su derecho a un "alto nivel de protección de la salud humana" según lo establecido por la Carta de los derechos fundamentales de la Unión Europea.
Autonomía
Para garantizar la independencia y la libertad de elección de las personas con discapacidad intelectual, debemos promover su autonomía. Para ello la UE debe impulsar programas de investigación médica con objetivos terapéuticos y proyectos sociales innovadores inclusivos que integren en la sociedad sus diversidades.