Qu'est-ce que l'UE pour la trisomie 21?
A European initiative where organisations, citizens, and politicians work together to celebrate World Down Syndrome Day. Together, we raise awareness about intellectual disabilities, especially Trisomy 21, also called Down Syndrome, the most common genetic cause of intellectual disability.
EU for Trisomy 21 (EUFT21) is a European collaborative network bringing together organisations, families, professionals, and self-advocates who are committed to improving the lives of people with Down Syndrome, also known as Trisomy 21.
Our network includes many grassroots initiatives and organisations working close to people with Trisomy 21 and their families in their own countries and communities. By sharing experience, building common projects, and learning from one another, we create stronger European cooperation and help bring the voices and needs of people with Trisomy 21 into wider public and policy discussions.
EUFT21 works to promote the freedom, visibility, health, inclusion, and equal treatment of people with Trisomy 21. The European Union can play an important role in areas such as healthcare, employment, education, accessibility, and human rights. However, support for people with intellectual disabilities is still often too limited, and stronger action is needed to ensure that their rights and dignity are fully respected.
To make a change, EUFT21 works to:
- Stop discrimination and make sure people with Down Syndrome are treated fairly, with respect for their dignity and human rights.
- Help people with disabilities learn new skills, build confidence, and become more independent in their daily lives and communities.
- Create chances for people with Down Syndrome to speak for themselves and talk directly to EU leaders, decision-makers, and the wider public.
- Push for better laws, policies, and funding to support people with disabilities and their families across Europe.
- Make sure the EU keeps its promises to protect disability rights and includes people with intellectual disabilities in its work.
Our activities include training workshops, skill-building programmes, awareness-raising events, and dialogue with leaders in the European Parliament and other European institutions. We also help people with disabilities learn about their rights, express their views, and take part in decisions that affect their lives.
Our work supports important European commitments, including the EU Strategy for the Rights of Persons with Disabilities 2021–2030. Through our projects and advocacy, we work for a Europe where everyone has a voice, equal opportunities, and the support they need to participate fully in society.
Que fait UE pour la trisomie 21 vouloir ?
Nous voulons que les besoins des personnes handicapées intellectuelles deviennent une priorité de l'agenda européen afin de garantir une réelle égalité entre les citoyens.
Visibilité
Les personnes handicapées ne sont pas présentes dans l'environnement politique, ne sont pas présentes sur le marché du travail ni dans les médias. Si les personnes handicapées ne sont pas visibles dans la société, il est impossible de créer les changements nécessaires.
Non-discrimination
La législation anti-discrimination de l'UE a parcouru un long chemin ces dernières années pour les différents groupes minoritaires, à l'exception des personnes handicapées. Les personnes ayant une déficience intellectuelle ont besoin de mesures d'adaptation spéciales pour s'assurer que ces lois et cette jurisprudence les protègent et pas seulement en théorie.
Santé
L'Union européenne doit agir dans le meilleur intérêt des personnes handicapées intellectuelles pour garantir leur droit à «un niveau élevé de protection de la santé humaine» tel qu'établi par la Charte des droits fondamentaux de l'Union européenne.
Autonomie
Afin de garantir l'indépendance et la liberté de choix des personnes ayant une déficience intellectuelle, nous devons promouvoir leur autonomie. À cette fin, l'UE doit encourager les programmes de recherche médicale avec des objectifs thérapeutiques et des projets sociaux innovants inclusifs qui intègrent dans la société leurs diversités.