Confidentiality and personal data management policy
The purpose of this confidentiality policy is to define the principles and guidelines implemented by EU for Trisomy 21 in the framework of the "EU for Trisomy 21" label and to affirm its commitment to preserve as far as possible the confidentiality, integrity and security of the data we collect in the context of our activities and missions.
The purpose of this policy is to inform you about the way in which we collect and process your personal data in accordance with regulations.
We invite you to regularly review this policy, which may be updated and supplemented. EU for Trisomy 21 , within the framework of the "EU for Trisomy 21" label, will bring any new version to your attention by any means of its choice, including online or by e-mail.
Who collects your data?
The present policy concerns exclusively the processing implemented by EU for Trisomy 21, within the framework of the "EU for Trisomy 21" label. EU for Trisomy 21, represented by its legal representative, Antonio Rosique 13, Clos des Pervenches 1300 - Limal (Belgium), is responsible for the processing.
What data do we collect?
We collect the data necessary for the accomplishment of the event "2021 for Trisomy 21". The information is communicated by sending online registration forms, directly accessible on our website. It may also be communicated indirectly by third parties who are linked or in contact with us. In this case, the persons concerned will be informed by e-mail of the data collected about them. They will have the possibility to have access to it and to oppose it.
We may thus be led to collect various data according to the purposes considered such as :
- Identification data: surname, first name, postal and e-mail address, telephone number, date of birth, postal code, country ...
- Personal life data: family situation, description (what you like, your hobbies...), photo...
- NGO data: website, social networks, purpose of your association...
On what basis and why do we use your data?
All processing carried out by EU for Trisomy 21, within the framework of the "EU for Trisomy 21" label, has a legal basis in accordance with article 6 of the RGPD, and is mainly based on our legitimate interest and your consent. However, they may also be based on one of the other legal bases provided for in Article 6.
Thus, data are mainly collected for :
- Allow the realization of events related to the celebration of trisomy 21 in 2021,
- Communicate and inform participants of the activities organized at these events,
- Facilitate relations with MEPs, citizens and NGOs,
- Comply with legal obligations.
How long do we keep your data?
Within the framework of the "EU for Trisomy 21" label, the EU for Trisomy 21 association keeps your personal data for the time necessary for the operations for which they were collected and in compliance with the regulations in force, it being specified that :
- Personal data may be retained for a period of two (2) years from the end of the events related to the celebration of Trisomy 21 in 2021, i.e. after December 31, 2021.
- Cookies deposited on the Internet user's terminal are kept for a period of thirteen (13) months from their first deposit in the user's terminal equipment.
- When there is an appeal against a third party or a dispute, your personal data may be kept until the expiration of all avenues of appeal.
No data transfer is made. In the event of an unsatisfactory response, you may file a complaint with the Cnil (Commission nationale de l'informatique et des libertés), the French body responsible for ensuring the protection of personal data.
Who has access to your data?
The data is only communicated to the association EU for Trisomy 21 within the framework of the "EU for Trisomy 21" label, to our volunteers and to our service providers. We make every effort to ensure that only authorized persons within the framework of the strict fulfillment of the purpose pursued and our legal obligations can have access to the data we process.
In order to ensure the efficiency and security of our processing, we may communicate them to external recipients, service providers and professional advice, for example for computer maintenance and security, hosting, management and maintenance of our websites, emailing, organization and management of communication campaigns, etc.
Where is your data stored?
Your personal data is stored on our internal servers in France.
What are the consequences if certain information is not communicated?
We specify in our forms the mandatory information with regard to the main purpose pursued by the affixing of an asterisk.
What security measures do we implement?
EU for Trisomy 21, within the framework of the "EU for Trisomy 21" label, is committed to treating the personal data it collects with the utmost care and attention and implements technical, physical and organizational measures to prevent, as far as possible, any disclosure, alteration or unavailability. We also implement a policy of minimization by reducing the scope of data collection to what is strictly necessary.
What are your rights?
In accordance with the General Data Protection Regulations 2016/679, you have the right to information, access and copy, rectify and update, delete, portability of data concerning you provided that the conditions for the application of these rights are met.
Under the same conditions, you also have, depending on the legal basis of the processing, the right to limit and oppose the processing of data concerning you. You may also withdraw your consent to the processing at any time if the processing is carried out on this legal basis and provided that the processing is not also based on another legal basis.
In accordance with Article 40-1 of the French Data Protection Act, you also have the possibility to give instructions regarding the storage, deletion and communication of your personal data after your death.
We inform you that you have the right to lodge a complaint with the CNIL if you consider, after contacting us, that your rights relating to data protection are not respected.
Who to contact for more information or to exercise your rights?
You can, subject to the production of valid proof of identity, exercise your rights by contacting us:
o By mail: Association EU for Trisomy 21 - 13, Clos des Pervenches 1300 - Limal (Belgium)
o By e-mail: firstname.lastname@example.org
What is a "cookie"?
A "cookie" is a file of limited size, usually consisting of letters and numbers, sent by the web server to the cookie file of the browser located on the hard drive of your computer. These features use third-party cookies directly deposited by these services.
You can at any time inform yourself and set your cookies to accept or refuse them in your web browser. You will be able to indicate your preference either globally for the site or by page.
These cookies are automatically generated by the operating platform, the Association EU for Trisomy 21 has no action in their generation.
However, depending on the platforms used, you have the possibility to oppose them, to delete them using the parameters of your browser or even to block them.
Privacy and image rights
In our registration forms, you may be asked to provide a photograph (not mandatory), which will be posted on this website and/or the social networks of "EU for Trisomy 21". These are distributed with the agreement of the persons concerned, who have the right to withdraw their consent at any time.
The procedures for exercising this right are identical to those relating to the processing of personal data, i.e. by writing to the personal data protection manager of the EU for Trisomy 21 association by post at the following postal address: Association EU for Trisomy 21 - 13, Clos des Pervenches 1300 - Limal (Belgium) or by e-mail at the following address: email@example.com accompanied by a copy of a valid identity card.